Well, just got back from my neurology appointment in Cardiff. Seems pretty sure that it is dystonia, going back on the L-Dopa again because of the way it was handled by my previous neuro (starting off with a smaller dose three times a day rather than a larger dose once a day then twice a day). Also, which is going to be interesting, there is going to be genetic testing, finally - gonna see me in three months and take the bloods for it then. There is a possibility that what I have could be Hereditary Spastic Paraplegia (HSP), but at the moment theyre hearing hooves and thinking horses rather than zebras. So yes! Finally got something relatively concrete, which I am happy about.
Hope all is well here.
T x
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