Long time no see! :)

[Techie]

Hey!

OK, well, lots been happening here regarding my health. Saw my neurologist last month, he's done another genetic blood test for me for SCA - Spino Cerebellar Ataxia. By his own admission, there is no sign of atrophy on my MRIs so its just to rule it out basically, and although my test for HSP came back negative SCA type 1 can mimic HSP. The diagnosis I have currently is spastic paraparesis, though the cause is currently unknown.

In the same breath, he announced that he is going back to Toronto to continue his training - suggesting that he isnt fully qualified! I know that everyone has to learn and all of that, it just sucks to be someone's practice dummy really. He said, rather doubtfully, that he's going to try and refer me to a colleague of his in Llandough hospital who runs a rehabilitation clinic. Got the letter yesterday and I have an appointment with her in September. What rehabilitation in this case means, I am not sure - I was referred to neurology by surgery to see if there was a neurological cause of the cavovarus deformity I have in my feet, but I havent been told whether the deformity has a neurological cause and this is five years later, lol. I will ask some very direct questions of my new neurologist, I think! Aside from all of that, I now need to have injections of b12 (theyre doing a loading dose at the moment meaning five injections, one every other day) and I will be having those at 3 monthly intervals.

Anyway! I hope everyone is doing well, and I shall speak to you soon. Love and light.

T x

[Paula]

Hi hunni. I’m so sorry you’re still a way away from real answers. However, sometimes, a different face will think of something go that hadn’t been considered before. I know when I saw my new neurologist, he flagged up that sleep apnea could contribute to the pressure on my brain - I was tested and have the condition!

As for your previous doctor, ‘more training’ may mean he wants to specialise more, rather than he wasn’t fully qualified….