Thankyou all.

I am pleased that it didnt turn out to be HSP - who wants a rare disease after all? However, if the dystonia panel comes back negative as well, I may be back to square one, virtually. Good to eliminate things, but until I know what it is I can't get help really, which is frustrating. I hope everyone here is doing well, and thanks again for your kind words. Love and light.

T x