OK!

Well, first of all, thankyou to everyone for the kind words regarding their experiences with wheelchairs - helps a lot. Also, had an appointment at Rookwood today and finally things are starting to move forward. Ive got the closest things Im getting to diagnosis, I think - Progressive Spastic Paraparesis, caused by a spontaneous genetic mutation, basically HSP without the H for hereditary! The treatment is going to be Botox in the first instance, possibly followed by an orthotic splint, with surgery as a fall back in case nothing else works. So...finally a PLAN!!

As you can imagine, I'm very happy that things are moving forward. I hope everyone here is doing well, and I'll speak to you soon.

Love and light. T xx