I was wondering the very same thing.
I was wondering the very same thing.
yesterday rachel made things up to me.
because we couldn't go to the museum today, she took me to KFC last night
it was nice. I had a 10 peace bucket with fries and a coke an she just had a burger
it was hot in their though. thought I was going to pass out
when we got back home we played hangman and I got 6 out of 6
it was a good night
I had a good sleep and now just about to have breakfast (rachel is going to make me fruit again)
today was a really sunny day and so rachel took me to the park.
(we got some drinks to stay hydrated), and basically spent the day at the park, watching the birds, and the butterflies, the bees, even the children with their parents
it was a nice day for it, rachel sat on the bench and I was in my wheelchair. we even saw a couple of people having a picnic (we didn't have one, I prefer cooked meals)
and then I wet myself so we had to go home to change.
A, rachel didn't bring any changes with her, and B, she doesn't like changing me in pubblic areas (mainly because most of the time it's quite embarrassing for me)
so we went home and she changed me, and then in the afternoon we ordered our online shopping, and had dinner
we had sausages for dinner, (from the local chip shop)
they were good
I am just fresh out the shower
rachel did my hair and everything
we've also had breakfast (fruit again), however: not much as their isn't much left until the shopping arives
feel quite achy (because the shower takes a lot out of me)
we are waiting for the shopping to come. we are both glad it is cooler today
Hunni, Suzi asked a few days ago if you wanted us to comment and ask questions on this thread? If you don’t, that’s fine but I’m aware I keep posting and I’m not sure if you want that. So, do you?
The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.
following post might contain a trigger (but I'll make some space before it)
all in all I had a really bad weekend, mostly watching tv and listening to music- really nothing exciting
in terms of my care needs: that all was pretty good and rachel got lots of time to herself over the weekend (some changes and 2 small seizures saturday) os all she had to cope with.
I slept both nights and didn't keep her up
what I wanted to post about was the death of pastor john, we got a call on sunday to say that the pastor who has ben doing church for 15 years passed away over the weekend
he was a really nice man, met him a lot of times and his wife is devistated too
this week we might invite her over to sit with us if she wants
I’m so sorry for your loss (I hope you don’t mind me posting)
The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.
today was a bad pain day, and it was not fun at all
the morning was okay- me and rachel had our fruit, we played a few games, but then the pain got too much and when rachel wheeled me back to my room, I just about had enough energy to do my alexa quiz, but then asked her to settle me in bed because I just had no energy to do nothing else but lie their. litirally the only reason I called her in through outg the day was to change me (which had to be done a total of 5 times today)
I only managed a little bit of dinner (some hamburger), now I'm just checking emails
hope everyone had a better day x
for the first time in a few days I actually have a healthy apetite (I'm really hoping that when rachel cooks the chicken later, she'll give me lots!). I am excited about this, because I actually want to eat and I don't need rachel to force me. I just hope it's worth it
I am doing quite well physically: I am having minimal pain today, plus I only have needed to be changed twice so far today (once when I got up and once at lunch time)
mentally: I'm feeling a bit blah and what's the point, but I think that's down to the fact that nothing's really going on in terms of activities and the last few days have been pretty much the same
yesterday was the second day I ate well (I had sausages). me and rachel sat in the room with the windows open (I don't think I've mentioned I like listening to the birds while I'm eating)
didn't do much yesterday evening actually. pain got quite bad so I ended up asking rachel to put me on a tv show and transfe me to bed (I watched the worst witch, I felt like something short and sweet)
it was a good episode, after I tried to settle- but I couldn't. first it was too hot so rachel turned my fan on, then I was in pain so she tried to re posission me, and then I needed changing- so it was out of bed, back in the chair and wheeled to the bathroom!.
it was a long night, and I didn't get to sleep until gone 11. I was hoping to be asleep by 9 or something
I slept through though until like 7 A.M, rachel changed me, got me ready and we had our fruit for breakfast
I had fruit again which was nice, and did my alexa quiz
also rachel wheeled me up the shop today so we could get some more drinks for my cupboard. it was really nice to be out, and it was quite breezy
nothing else planned, right now I have music on while she is in the kitchen.
pizza is on the dinner menu
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