Long time no see! :)

[Suzi]

Lol, I'm just impressed that you've managed to get 3 neuros to see you! I struggled to see mine each year and then they lost me..... Lol

[Techie]

Oh no - Im sorry to hear that, Suzi. Did they sort that out for you?!

Saw my new neuro today. Aaaand....hes not convinced its dystonia at all, lol. He's sending me to a dystonia specialist in Cardiff and theres going to be another MRI, this time on my lower spine. I was hoping and expecting that he would have a different take on this than the last guy, but I didnt expect this much of a 180. Much more of a movement specialist where as the first neurologist was a peripheral nerve man, so...we shall see! I shall keep y'all up to date on how things progress. Hope everyone is well.

T

[Suzi]

Wow! That's very different! What does he think it is?

[Techie]

He's unwilling to say, I think - I did ask him and he skirted the question. Ive done some looking online, and, if its not dystonia, it could be some kind of nerve compression in the lower back, causing the small muscles of the feet to spasm/cramp - hence the MRI, I guess. Ive been reading online about the woman Im going to be seeing in Cardiff, and shes been looking at a form of dystonia (myoclonic dystonia) and its link with depression and anxiety and with mental health as a whole (nerves, pathways, etc), among other things. Fascinating stuff, her name is Dr. Katheryn Peall, works for the university.

[Paula]

Blimey, what a turn around. I really hope the appointment comes through quickly, hun

[Suzi]

That sounds really interesting and as if you're being looked after!

[Techie]

Hello there!

Well, had my autism assessment this week (not sure whether I mentioned that it was coming, can't remember, lol). It turns out that I have Asperger's - its such an enormous relief, Ive always known something was going on, now I know! I have made a youtube video about it and, if anyone is interested in seeing it, I will provide the link in a separate post.

As far as the other neurological intrigue thats been happening? Still waiting on the MRI and the appointment in Cardiff, will of course keep you updated. Cheers guys, I hope everyone is well.

T

[Suzi]

Hey Aspies is cool! My husband, son and youngest daughter all have it As does one of our previous members - she's only just recently had the dx too.
Hope the other appointments come through soon.

[Techie]

Aww, cheers! )

Mmm, my neurologist (who helped with the referral) said its a lot more common than the used to think. There are even clinical psychologists like Professor Tony Attwood who congratulate people when they are diagnosed, which I think is great - its a positive introduction to the word Aspie, a word that people with the condition will hear a lot in their lives in both negative and positive ways. Anything that can give people a positive grounding about it is valuable, I think. Because all it is is a neurological difference - we define ourselves by differences all the time (names etc, we are not one big Gestalt entity after all), so why not define ones sense by this particular difference if one chooses to? First few days it was very...disorientating, but its incredibly validating to know that there is in fact something different about me because I've always known that there was.

Anyway. Hope all is well here, and I shall speak to you soon - thank you for your kind words.

T

[Techie]

I meant for the first emoticon to be a smiley too - been doing the eyes nose and smile for quite a while on youtube and places, lol.