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Thread: Long time no see! :)

  1. #21
    Boss Lady ;) Suzi's Avatar
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    Loving the optimism Always hold on to hope....
    Please always remember that I am always right. I have a framed certificate to prove it.

    When in doubt, stop and think... WWSS? (What Would Suzi Say?)
    For more info please see
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  2. #22
    Moderator OldMike's Avatar
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    Like your optimism, it's good to have such a positive outlook.
    72 and counting, less of the "Old" call me "Mike" - The worst Christmas Joker 2018
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  3. #23
    Awww, Im the same, Angie. Anti inflammatories almost never work for me either, unless my legs are so bad that I have a job to get out of bed.

    Bit of an update, I have started the dopamine treatment for the dystonia "just in case I have it". I don't know if its working or not, but Ive only been on it since Friday, 125mgs a day. Second week is 2 pills of 125, third week is 3 of them. If, by that point, there is no difference, I have to contact the neurologist through his secretary and tell him. Should know something next week when the dose goes up. If it doesnt work, botox, if botox doesnt work Im not going to have baclofen, I'll just take a risk on the operation, I think.

    Anyway! Thankyou for your support, people. I hope all is well.

    T

  4. #24
    Boss Lady ;) Suzi's Avatar
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    I'm glad that you have a plan and are being given some treatment....
    Please always remember that I am always right. I have a framed certificate to prove it.

    When in doubt, stop and think... WWSS? (What Would Suzi Say?)
    For more info please see
    THIS thread


  5. #25
    Princess Sparkles Paula's Avatar
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    Hope the dopamine starts working soon
    The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.

  6. #26
    Update! Well, the dopamine didnt work. It made very little difference to the condition I have, and the side effects were pretty rough. So, Ive let my neurologist know, and will await the botox!

    Hope everyone is doing well, speak to y'all soon.

    T

  7. #27
    Princess Sparkles Paula's Avatar
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    Iím so sorry, lovely. Any idea on time frame for the Botox?
    The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.

  8. #28
    Guardian of the North and kipper holder Angie's Avatar
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    I'm sorry it didn't work x
    If you canít fly, then run, if you canít run, then walk, if you canít walk, then crawl, but by all means keep moving.
    Quote by Martin Luther King JR

  9. #29
    Boss Lady ;) Suzi's Avatar
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    Sorry lovely... Hope that the botox works for you.
    Please always remember that I am always right. I have a framed certificate to prove it.

    When in doubt, stop and think... WWSS? (What Would Suzi Say?)
    For more info please see
    THIS thread


  10. #30
    Cheers, ever'body!

    Well, there has been a new twist. The neuro I was going to has now transferred me (apparently) to someone else - an MDS, or Movement Disorder Specialist. The guy I have seen is more of a peripheral nerve man. Heard from his secretary about the transfer last week, nothing since - spidey sense was tingling a bit so I got in touch with this new guy's secretary...and the transfer hasnt been made, lol. Have to wait now until monday when she speaks to the secretary of the first neurologist to find out whats going on, lol. Meanwhile, things have stagnated somewhat - can be hard to keep spirits up, but one must always try I feel. As desperate as things get, one must always cling to hope...

    Anyway! Hope everyone here is doing well, and I shall speak to you soon.

    Cheers

    T

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