Hi hunni. I’m so sorry you’re still a way away from real answers. However, sometimes, a different face will think of something go that hadn’t been considered before. I know when I saw my new neurologist, he flagged up that sleep apnea could contribute to the pressure on my brain - I was tested and have the condition!
As for your previous doctor, ‘more training’ may mean he wants to specialise more, rather than he wasn’t fully qualified….
The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.
Techie (12-07-21)
Hey hunni, lovely to have a catch up with you. Can you write a really direct blunt list of questions you want answered and maybe see if your lovely Mum or a trusted friend could go with you to get the answers you deserve?
Do a little of something that makes you happy every day!
Techie (12-07-21)
Hey.
Maybe he wants to specialise more, yes, but some of the things he's said, combined with his age - clearly he's a junior consultant at the start of his career, and I can't help wondering why they gave him a case of this level of complexity. As for someone coming in with me? Can't because of the pandemic, but even if I could take someone in with me it would make me uncomfortable, honestly. Ive written several lists of questions for them, some of which have been answered but most have not. Im just hoping this new one can help a bit more at this point.
Cheers guys, and I hope all is well.
T
Keep on fighting love. If you struggle cognitively then you can have someone with you. I know because I don't normally take in what people say to me in appointments so I take Marc in with me....
Do a little of something that makes you happy every day!
Hello there!
Well, I had the appointment with neurology - it went fantastically well. Setting me up with an appointment with orthotics at Rookwood and theyre contacting my surgeon so that I can get an opinion on whether the tendon transfer operation is still on the cards. What's past is prologue, so we'll see what happens next. Its such a relief - today is the first day in a long time that Ive been happy to do nothing.I went in by myself as always, did fine.
I hope everyone is doing as well as they can be, and I'll speak to you soon. Love and light.
T x
Well done for going in and talking them lovely! So glad you're being treated well and being listened to and taken seriously..
Do a little of something that makes you happy every day!
Techie (11-09-21)
That sounds really positive!
The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.
Techie (11-09-21)
Hey.
Well, I have a fitting for a wheelchair coming up which I have mixed feelings about, honestly. At the end of the day, its going to be helpful if I need to go long distances, so that's good, focus on the positive, etc. My appointment at Rookwood is now with Rehabilitative Medicine rather than orthotics - hopefully its the same sort of thing though. Just thought I'd drop in and update y'all.
Hope all is well, speak to you soon.
T
That's great news! I understand the mixed feelings, I've just bought a new-to-me mobility scooter (He's called Leroy Marlin) and as much as I have resisted it's allowed me to do things that I've not been able to do for years! Embrace the positives love... I know it's f*ing tough, but go with it.. You can always customise it!
Do a little of something that makes you happy every day!
I promise you, from experience, that getting a wheelchair will open up so much for you. I get the mixed feelings, but it’ll be a life changer
The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well.
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