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Hello there!
Im sorry I havent been here in a while. Bit of an update, the Baclofen didnt work - broke out in an allergic rash around my neck and had a job to stay awake, have to wait till December now before I can see the neuro again. How is everyone coping with the whole lockdown 2 thing looming? I hope everyone is doing ok and I will try to be around more than I have.
Hang in there, guys.
T
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Sorry it didn't work for you love. Ay idea what the neuro will suggest next?
Lockdown 2? I think it's coming for us here so we will just have to do what is decreed and make do....... You?
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I’m so sorry that didn’t work out :(
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Hey there, thankyou for your kind words.
As for what the neuro is going to try next? Anyone's guess really, though I would imagine it will be botox - which Im ok with, kinda wish theyd done that in the beginning in some ways, lol. Hard to stay positive right now - the weather, the lockdown, my health...the depression hasnt got much of a chance. Oh well, no choice - just have to keep on keeping on!
Hope all is well, speak to you soon.
T xx
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Then come and talk to us some more ;)
Lockdown sucks, sh)t physical health sucks, not knowing what's happening or what they are doing next sucks too.... (panda)
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When do you next see Neuro?
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Hey, guys. :)
Well, I heard from the neuro today - the test came back negative for HSP, which is good. Still waiting for the dystonia panel though, so I'll let you know what the results are when I get them. I see the neuro again in December, so its not too long a wait now.
Hope everyone is doing well - speak to you soon. T x
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Hey hunni, welcome home ;) I've missed you! :) Glad the HSP was negative. How are you doing in yourself love?
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