Today’s been very frustrating - trying to do some charity work and my laptop (actually Jess’s laptop that she stopped using because it ‘didn’t work properly) is misbehaving.
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Today’s been very frustrating - trying to do some charity work and my laptop (actually Jess’s laptop that she stopped using because it ‘didn’t work properly) is misbehaving.
I've had a message from Paula - she's got to go into hospital tonight wrt her neurology issues. She will be seeing her consultant tomorrow. She is going to try to keep me/us updated....
Many thoughts, love and prayers lovely....
Thanks for the update Suzi, my thoughts and prayers are with you Paula (bear) (panda)
I'm so sorry to hear about this, my thoughts and prayers are with Paula too.
Not liking the sound of that :(
You are in my prayers Paula.
(panda) hunni x
I'll pass on everyone's thoughts to her.
Thank you everyone! And, thanks Suzi for keeping me going.
I got a call yesterday afternoon to go into Southampton General that evening in prep for a lumbar puncture today. I was very lucky to get a room to myself (tho it was on the men’s ward - ewww you lot are gross). There was a patient yelling most of the night and the bed was like a board, so didn’t get much sleep.
I had the LP this morning (done by a very cute Greek doctor ;)). It was about as comfortable as sticking a needle in my spine, and being in a position that I haven’t managed since my CRPS happened, could be - and seemed to have gone on for ever. But, I kept a lid on all the pain and on the anxiety by breathing exercises and got through it. Si turned up halfway through, which helped.
Results are that I definitely have idiopathic intracranial hypertension (too much fluid on the brain). The dr drained some fluid which got it down to normal levels but that’s only a temporary thing as the csf fluid is constantly replenished. So treatment is medication (which may interact with my lithium so I’ll need weekly blood tests to begin with) and I have to lose 10% of my body weight.
So, I’m very sore but I’m home and we have a plan :)
You are so brave. I gotta admit I was a bit concerned about you but glad you have answers and a way forward. Really glad to have you back and I’m sure you’re even more happy to be home.