Thankyou, Paula and Mike.
Yeah, its the hardest thing to overcome, not being able to do things. Ive been trying to put it into words like that for years, and now I have maybe I can work on it. :)
T
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Thankyou, Paula and Mike.
Yeah, its the hardest thing to overcome, not being able to do things. Ive been trying to put it into words like that for years, and now I have maybe I can work on it. :)
T
(panda) Definitely a symptom I see in my husband...
Hey there, folks.
Had my neurology update. They still think its dystonia, and I am hoping to start treatment this coming week with a trial of dopamine. If it works, problem solved I guess. If not, it will be botox then a class of drugs that includes Baclofen to help control the spasms. The cervical spondylitis is a thing, but I don't know what they can do for that realistically, and I have been diagnosed with arthritis in my right knee. Soooo, getting old, I guess - just thought I would have had a little more time before all this started happening, I'm not 42 yet!
Anyway! :) Hope everyone is doing as well as they can be, thank you all for your kind words, and I look forward to speaking to you all soon.
Cheers and love and light.
T
It's good that they have a plan!
One more thing...
Angie. You have cervical spondylitis too? Have they been able to help in any way? Ive heard that things like neck pillows etc can make a difference, but I don't know. Any information would be gratefully received.
Cheers :)
T
Hey hunni, how do you feel about it all?
Hey hunni, I was diagnosed with arthritis when I was 12.... Glad you are getting some answers though. That's really positive..
How are you doing though? How's your mood? House? Etc?
Awww, I didnt know that you were diagnosed so early, hon.
How do I feel about it all? Well, Im excited, honestly. If the dopamine works, I may be able to walk normally again, which will be great. :) I am guardedly optimistic, as our condition does tend to make one at times, but at least its either going to work or its not, so at least I'll know soon enough! And, if it doesnt, trying something else will be ok - its a process and I have become as resigned to it as I get about things (which isnt very, but a bit, lol).
Sooo, my mood is pretty good right now. Motivation is still an issue, but its the nature of the beast I guess. As for the house and everything, I still live at home (never got the money to move out) so things are fine, thankfully. :) I hope you guys are doing well too, and I'll catch you later.
Cheers
T
I don't take any thing for my spondilytis to be honest and rarely see a doctor about it. They just say anti inflamitaries etc but they never help me