View Full Version : Truth, the whole truth and nothing but the truth
Strugglingmum
04-01-21, 08:19 AM
Hope things are easier today. X
Jaquaia
04-01-21, 09:35 AM
Do you not take regular pain relief?
I don't generally need it as it's generally well managed. I think the cold has kicked this off.
She’s a northerner. Tough as nails up there. Lol
Exactly!!! ;)
How are you today?
Headache seems to have gone but my hands are still achey and stiff
Are you going to be kind and gentle as possible to yourself today?
Jaquaia
04-01-21, 10:00 AM
I have to do this essay as it's due tomorrow but not going to do much more than that.
I have to do this essay as it's due tomorrow but not going to do much more than that.You're always doing essays!! Are you studying full time?(think)
Jaquaia
04-01-21, 12:03 PM
How’s the studies going?
Slowly. A bit behind but getting there mostly.
You're always doing essays!! Are you studying full time?(think)
Yes. Though considering deferring one module.
Are you able to pace it bit by bit to give your hands a break every now and again....
Jaquaia
04-01-21, 03:21 PM
Trying to!
Jaquaia
04-01-21, 07:30 PM
Sort of. Need to do a bit less resting and a bit more writing though!!!
Can you ask for an extension?
Jaquaia
04-01-21, 09:09 PM
A bit late now as it's due tomorrow. Still, nearly a third of the way through and can use the 12 hour grace period so it may not be my finest work but I'll have something to hand in at least.
You'll do brilliantly love.
Jaquaia
04-01-21, 09:55 PM
Fingers crossed! Or I'd cross them if it didn't hurt anyway!
Strugglingmum
04-01-21, 10:26 PM
A bit late now as it's due tomorrow. Still, nearly a third of the way through and can use the 12 hour grace period so it may not be my finest work but I'll have something to hand in at least.
I just know you'll get it done.....and ace it as usual!
Morning love, how are you today?
Jaquaia
05-01-21, 09:38 AM
Only just woken up so think it's safe to say that fatigue has kicked in. Wrists are stiff and hands are feeling a little weak but typing is a bit easier than writing so should be ok.
Do you know what's caused the flare? Do you need to speak to the pheumy nurse?
Jaquaia
05-01-21, 10:53 AM
Probably the cold. We're a good degree colder here than in Hull and it's making a bit of a difference. Plus it's a cold house too which won't be helping. As long as I keep warm I'll be fine
Can you do more to get warmer? Heating etc?
Jaquaia
05-01-21, 11:37 AM
Heating isn't that effective downstairs, and to help that matter, we got up to find the boiler is leaking!
Thats terrible. But then please find some other ways to keep warm. Extra blanket. A comfy cuddle. Being cold is already worthless but if you are tired and you have pain its even worse.
Jaquaia
05-01-21, 03:57 PM
This isn't going to well. I have 220 words left to discuss gender, age and intersectionality in regards to a case study. Ideally I need to edit race down massively and discuss class a bit more and just argh!!!
I indirectly bollocked the occupational health doctor who just rang J for being bloody rude and constantly talking over him! He heard me as he started shutting up until J had finished talking. Still not fit for duty as blood pressure... so he's angry and deflated and feeling low.
Oh and Cruella wants the children to go to school because of her working, not that she actually bothered with homeschooling last time but then they're asking for work back this time. J has agreed as we both feel that it will help T as he hates being at his mothers anyway, and A needs the structure. She's come on so far with her reading and writing in just a term, to the extent that J had to message her teacher and ask for harder reading books, and it would be a shame for her to go backwards.
And my fingers are freezing but I can't type wearing the warm compression gloves, the joggers that actually fit me (though are a little big already) have chocolate all over the arse because of children so having to wear too big clothes... only about 6 inches away from being able to tie the waistband behind me! The guttering is leaking and stripping the paint off the decking and we can't get it done at the moment due to how much money J has lost due to this debacle. Oh and not forgetting we woke up to the boiler leaking and the first British Gas can get to service it is the 26th.
Too early for bed?
It's a shame they couldn't be with you for their home learning! How come they can go to school? Is she a key worker? According to the rules both parents have to be key workers or the children to be vulnerable to be allowed in?
Oh no! What a nightmare about the clothes and the boiler! Bugger!
Sorry J can't go back yet, I'm glad you stuck up for him with the OH person! It's good he's got you!
Jaquaia
05-01-21, 07:04 PM
Apparently she is a key worker, it will probably be better for both children but time will tell.
I'm 200 words over my limit so have a lot of editing to do this evening and my references, but I have something to submit which I hope is half decent.
Apparently she is a key worker, it will probably be better for both children but time will tell.
I'm 200 words over my limit so have a lot of editing to do this evening and my references, but I have something to submit which I hope is half decent.
Anyone told you you're a clever old thing?(nod)
Is J allowed to be given bp meds and still do his job? I know you’ve said in the past some meds are not allowed....
Jaquaia
05-01-21, 08:10 PM
1631! Taking full advantage of the 10% leeway!
Nah Flo. Studying 2 level 3 modules at the same time? Not sure that's clever!
Paula, he probably can. It would have to go to the duty pharmacist and he may have to be accompanied for a week or so, he's just really resentful that he may have to take meds for something he knows isn't an issue, and I'd agree with him as his BP isn't an issue at home. I've pointed out though that his anxiety has caused issues and maybe that needs to be medicated for a little while. I've also pointed out that the anxiety meds they're likely to give him, propranolol, are also for blood pressure so may lower it enough to get him back to work.
Well done for getting the essay done!
Are you resting tomorrow?
Jaquaia
05-01-21, 09:15 PM
Getting a shop out of the way, going to do a couple of hours studying just to get on top of things, and we're going to go for a nice long walk. I might be knackered afterwards but it makes me feel pretty good mentally, especially as 3 years ago I struggled to walk 350m but can manage 4 and a half miles now
I'm so glad you love going for the walks. It's so good for both of you!
Jaquaia
05-01-21, 09:26 PM
J has asked a few times as he said it really helps his head, but I've been so snowed under prepping for this assignment. Going to try and get up early to get shopping sorted then just spend some time together outdoors. We're going to get an OS map too and explore some of the other public footpaths too.
That sounds lovely! Take a picnic? Or a flask of tea?!
Jaquaia
05-01-21, 09:35 PM
It would be hot chocolate for us!
OO that's a fab plan! And a picnic blanket too!
Strugglingmum
05-01-21, 09:40 PM
Sounds lovely. I love a hot chocolate too. X
Could you get your shopping online?
Jaquaia
05-01-21, 10:04 PM
We use Lidl. It's not too bad really, the one in Beverley is out the way a bit and is fairly quiet.
Need to add marshmallows to the list for hot chocolate!
Stella180
05-01-21, 10:22 PM
Don’t forget your squirty cream
Jaquaia
05-01-21, 10:33 PM
The kids don't have it! Going to get some for myself though I think!
You should. A treat is truly something you deserve. Doing all that work yesterday and still finding time to reply to others here and be so nice and caring.
I hope you stayed nice and warm and had a good night sleep (panda)
We shop at Lidl all the time...they have such lovely hams, cheeses and all sorts of foreign goodies. They've won awards for all sorts of things. I use their baby marshmallows for the shop's Rock Road, in fact everything for RR is from them. Hope you enjoyed your HC.
Morning love! Hope your shopping trip is quiet and easy ;)
Jaquaia
06-01-21, 10:15 AM
Fingers crossed! We're on a go slow this morning so not even had breakfast yet!
Flo, their edam is lactose free so I can actually eat it! It made me more excited than it should have when I realised! (giggle)
Thanks Mira
Strugglingmum
06-01-21, 10:57 AM
Have a good day......stay warm!!
I really don't know what to say Jaq!!(rofl)......that's a first!
Jaquaia
06-01-21, 01:26 PM
(giggle)
Shopping all done and put away, freezer filled up, cupboards filled up and it will be top up shops for the rest of the month. Been amused by Toby since we got back! Daft cat attacked his own tail!
I always love it when cats do that haha. You come across a bit better? Did get some goot chores out the way.
Jaquaia
06-01-21, 01:56 PM
Just the shopping and the washing. We're going for a walk tomorrow now instead so sat watching The Mentalist.
Jaquaia
06-01-21, 08:36 PM
Jelly babies whilst studying is dangerous!
(rofl) (rofl) (rofl) (rofl) I always use lollipops! Sugar free ones are fab for a shout shift!
Jaquaia
06-01-21, 08:40 PM
I've got through loads of work! But I've also gotten through loads of jelly babies...
Jaquaia
06-01-21, 08:41 PM
Good job we're going for a long walk tomorrow!!!
What colour jelly babies are your favourite? Mine are the little black black currant ones....but they have to be boy jelly babies cos they have more on them!(rofl)
Jaquaia
07-01-21, 08:56 AM
That was J's excuse for making gingerbread ladies with massive boobs! (rofl)
I hate the black ones so I eat them with a different one at the same time. I can't stand blackcurrant!
How can you hate blackcurrant??
Jaquaia
07-01-21, 09:21 AM
I don't like the taste and I also think it's partly psychological, as my mum gave us apple and blackcurrant pie when I was 4 or 5 and I ended up throwing up, and being sick when you're that age and everything was dark red... Refused to eat/drink it since. I've only just started eating black jelly babies, I used to give all my blackcurrant sweets to my mum!
Fair enough, vomiting something up tends to have that effect on me too ;)
Stella180
07-01-21, 09:28 AM
I’m guessing neither of you eat carrots then?
Jaquaia
07-01-21, 09:29 AM
(rofl)(rofl)(rofl)
Barely cooked carrots, and before I moved in with J, only raw carrots! They taste vile once they've seen heat!
Stella180
07-01-21, 09:34 AM
Absolutely agree with cooked carrots, they lose all their flavour. Gimma a raw carrot any day. My mum used to sometimes save a raw carrot when cooking Sunday lunch cos I wouldn’t eat them cooked, and put that with my dinner. I’d actually forgotten that til now.
Jaquaia
07-01-21, 09:40 AM
My mum did the same! And my nana. J has bags that go in the microwave and we do carrots for 3 minutes. They're hot but taste like raw carrots. It's the only way I can eat them.
Stella180
07-01-21, 09:55 AM
Tightly steamed carrots is at close as I get to cooked carrots and they retain their crunch.
Crash isn't fussy about how he gets his carrots lol
Wadya mean you don't like the black currant ones?? Post them to me and I'll send you the green ones!
I can't eat raw carrots...I can't get rid of them! I grind them to a pulp then spit them out...ewww....isn't it odd that when you throw up there's always a bit of carrot in it? even if you haven't had carrots! My mum used to try and make me eat marrow...it made me throw up like you did....now I can't eat melon, courgette or aubergine..the texture makes me heave! so do tomatoes that are too ripe....bleugh!
Stella180
07-01-21, 12:53 PM
I love marrow, not had it in years though.
Jaquaia
07-01-21, 02:21 PM
Deal Flo! I've never tried marrow, never fancied it! Me and A are going to try and grow marrow and French beans this year!
I love it too, stuffed marrow is really nom! We grew marrows when F was little. She adored it! And they all loved courgettes too so we didn't have many marrows by the time they'd picked them!
Jaquaia
07-01-21, 02:34 PM
When I said grow marrow I actually meant grow squash...
4 and a half mile walk in the cold has obviously affected my brain!!!
OOO I've tried pumpkin, but not other types of squash...
Jaquaia
07-01-21, 03:10 PM
I don't know what kind of squash it is, just a small green one.
Oh and J can go back to work! His GP said his blood pressure is a little higher than she'd like but she has no concerns due to everything he's had going on. He has to be signed off by occupational health but he should be back at work on Wednesday!
That's fantastic news! Well done J!
Strugglingmum
07-01-21, 03:47 PM
So pleased for J!!
Stella180
07-01-21, 04:02 PM
Great news. I bet he can’t wait to get back to it.
That's great about J...he'll feel much better when he's back at work. Can we talk about potatoes instead? I'm starting to feel a tad bilious!!
:(
Jaquaia
07-01-21, 05:53 PM
How about double lollies Flo??
Jaquaia
07-01-21, 11:03 PM
Ok, I meant to study but ended up doing a unicorn scratch picture for A instead! They're happy to be home, A was fast asleep before I went back in for the extra hugs she asked for.
I have my blood test and smear tomorrow so wish me luck!
Will be thinking of you, love (panda), what time?
Jaquaia
07-01-21, 11:06 PM
11. The nurse is doing both in the same appointment. Hopefully she won't get mixed up with what goes where! (giggle)
Stella180
08-01-21, 01:55 AM
That could be awkward lol
Good luck for today Jaq......I can do double lollies!..ermm....what are double lollies?(think)
Jaquaia
08-01-21, 08:59 AM
https://www.amazon.co.uk/dp/B002YZL5ZS/ref=cm_sw_r_cp_apa_i_w0b-FbKKN4NBR?_encoding=UTF8&psc=1
Hope the tests go OK. Well done for going for your smear!
Jaquaia
08-01-21, 11:32 AM
All done. It wasn't as bad as I thought but then it never is, but it definitely helped that the nurse was lovely.
The car won't start now though...
Stella180
08-01-21, 11:36 AM
Oh dear? The MG not a fan of the cold weather? Gotta is it even my dirty diesel with its heavy duty battery has felt the strain this week but managed to start.
Oh no! Do you know what's up with it? Are you at home?
Oh thats so bad. When you try and start, does it feel like the battery is empty. Does it seem like the engine is flooded?
Jaquaia
08-01-21, 02:44 PM
We got home about 1. Apparently it was something simple like some corrosion between bits something something starter motor something something but fine to drive now.
Yeah I don't do technical!
Sorry, did not mean to imply something bad. Glad its sorted.
Jaquaia
08-01-21, 03:15 PM
Sorry Mira, didn't see your reply! It did nothing, didn't even try to turn over. Really simple fix though and something J can keep an eye on himself.
Jaquaia
08-01-21, 05:20 PM
Me too though we've both had enough today. Had to have an emergency callout with British Gas as the boiler is leaking too. We've gone through all our spare towels! So until the technician gets a part, hopefully tomorrow morning, we have no hot water. Oh and that callout was hard to get as they're on a 5 day strike and only providing emergency callouts!
Oh bugger! But with children and you with a disability they should count you as emergency..
Jaquaia
08-01-21, 06:42 PM
We were. But he needs to get a part so it will be tomorrow morning. At least we're not leaking everywhere
That's a complete pita isn't it? Glad they're sorting it though...
Stella180
08-01-21, 07:35 PM
At least you know he’ll be back to sort it out quickly. Have you got the home care or signing up for it now? I think it’s £99 repair if you sign up to the insurance.
Are you signed up to your energy provider’s priority services register. You should be eligible, especially with your hands (although mine also considers mental health as eligible)
Jaquaia
08-01-21, 09:16 PM
Home care I think Stella. Not sure as J sorted it.
Paula, I hadn't considered that! British Gas website says disability or long term illness so I'll get J to enquire.
I spoke to mine the other day- they had loads of eligible categories (I was eligible in 7 categories but we’ll breeze past that...;))
Stella180
08-01-21, 10:58 PM
I’m not sure of every category. Can’t remember but I know I tick at least two.
Jaquaia
08-01-21, 11:07 PM
I possibly tick 1
That makes me feel like I’m falling apart (giggle)
Stella180
09-01-21, 12:38 AM
https://utilita.co.uk/help/priority-services-register
According to this I definitely can tick 3 possibly 4
Hope something can be done about your boiler today. It should be made illegal to strike in this weather, rotten so n so's.
Jaquaia
09-01-21, 08:36 AM
2 on utilita's list, 3 in a flare!!
Hope something can be done about your boiler today. It should be made illegal to strike in this weather, rotten so n so's.
What really (swear)(swear)(swear)(swear)es me off about the strike over pay - 5000 of their colleagues we’re made redundant last year (inc Si) but this lot kept their jobs.......
Jaquaia
09-01-21, 10:06 AM
Boiler man is here, fingers crossed for heat soon! And breakfast! Breakfast would be good.
Hope it's fixed by now!
Interesting list for the PSR - we tick about 5/6...
Jaquaia
09-01-21, 12:00 PM
Still here. Heard some muttered cursing... still bloody freezing!!!
Sending warm hugs! Can you wrap yourselves in blankets?
Jaquaia
09-01-21, 12:11 PM
We're in thick socks and hoodies at the moment. Not even had breakfast as he's been here since a little after 9, though got the kids sorted at least
Oh no! How much longer are they going to be do you think?
Jaquaia
09-01-21, 12:46 PM
Hopefully not too much longer as I can't feel my fingers!!!
Jaquaia
09-01-21, 02:32 PM
We do! We have another leak on the boiler though and the part is obsolete, so an option is for us to source it ourself and they'll come and fit it and give us the money back.
Oh hooray for heat! Hope the part is easily sourced...
Jaquaia
09-01-21, 05:16 PM
We think we've got one!
Pleased you have heat! Probably the coldest it's been for years where you are.....hope you get it properly sorted soon.
We think we've got one!
Phew!
Jaquaia
09-01-21, 07:04 PM
Pleased you have heat! Probably the coldest it's been for years where you are.....hope you get it properly sorted soon.
We're right on the edge of the Yorkshire Wolds too, and more or less out in the open country so it feels much colder than Hull.
Glad you've got it sorted...
Jaquaia
09-01-21, 07:24 PM
I've been wearing a hoodie most of the day with the sleeves over my hands. In fact, I wore my too big hoodie, and it's big to the extent that A can get in it with me and there's still a little room!
Stella180
09-01-21, 07:44 PM
I would be happy to be it trackies hoodie and slippers but a certain 4 legged creature was sat shivering so had to put the heating on.
Jaquaia
09-01-21, 08:02 PM
She likes her comforts! (giggle)
Stella180
09-01-21, 08:13 PM
I’m not into dresses dogs up but I’m so tempt to buy her a puppy jumper to save me putting the heating on all the time lol
Stella180
09-01-21, 10:29 PM
It seem she is an awkward size. Anyone wanna knit/crochet a custom doggy jumper for the diva dog?
Ffs woman! It’s the 21st century, if it’s freezing out there, put the friggin heating on!
Stella180
09-01-21, 11:53 PM
But it gets too hot for me. I like the cold, she likes the heat.
Morning lovely, how are you doing today?
Jaquaia
10-01-21, 11:32 AM
Tired. On a go slow today. The plan had been to start painting A's bedroom but J has said no and he'd much rather I rest...
J is a sensible man. You should listen to him(giggle)
Jaquaia
10-01-21, 11:38 AM
I showed him that and he looks so smug!
J is definitely right. It's about time you listened to someone....
Jaquaia
10-01-21, 05:38 PM
Well we ended up popping out for some bits we needed and then we sorted some of the kids toys so we could get Christmas presents put away. By kids, I mean A's as I've been asking T to tidy his room for months so his have been taken up and dumped in a stack on the floor!
Oh no!
Have you actually managed to rest at all?
Jaquaia
10-01-21, 07:06 PM
I've spent some time just sat with J. I did cook tea as we fancied yorkshire pudding, but sat now and watched an episode of the Mentalist. Going to do a bit of uni work then settle and read for a little while.
OO I haven't had a yorkshire pud in ages! I'll add that to my list of things I want to eat this week. It can join the very definite urge I have for crumble and custard!
Jaquaia
10-01-21, 10:34 PM
I end up making them fairly regularly, the kids love them and J is always trying to steal more!
I would love to try one some day. Sounds like a real treat.
How are you today?
Jaquaia
11-01-21, 12:02 PM
It's so simple! I use 8 tablespoons of plain flour, 3 eggs, salt and pepper, enough milk to make it into a thickish batter. Heat the oven to 180-200, put some fat in a deep tray and heat until smoking then pour the batter in and bake until golden brown. Don't open the oven door until it's ready. Generally takes about 40-45 minutes, less if you're making individual ones.
I'm ok, taking it fairly easy as it's freezing here today.
Stella180
11-01-21, 12:05 PM
Yorkshire puds and basically a thick pancake mix.
Jaquaia
11-01-21, 12:12 PM
And tastes amazing with gravy!!!
Stella180
11-01-21, 12:34 PM
Oh absolutely! Is a Sunday roast even a Sunday roast without Yorkshire puds and lashings of gravy?
Slurp! When I lived in Sheffield, our next door neighbours used to have a big yorkshire pud with jam on it!! Never heard of that before!..much prefer gravy made from the meat juices!...now I'm starting to slobber like an old dog!
Strugglingmum
11-01-21, 01:11 PM
Love a good toad in the hole
Love a good toad in the hole
Mmmmmm
Jaquaia
11-01-21, 02:07 PM
I use the chipolatas from Lidl in toad in the hole, they're lovely!
Haven't had toad in the hole for ages! - we used to have it at school, and we called it 'frog in the bog'! Might get Ian to make Toad in the hole...he's making a curry for tonight.
Stella180
11-01-21, 04:53 PM
You mentioning curry, I saw someone post online how one of her favourite meals is pasta with tikka massala sauce. It actually sound really nice so might have to try it sometime
Jaquaia
11-01-21, 05:22 PM
How's your day been?
Tired, fed up and my wrist hurts
Awww, is it worth talking to your rheumy team about your pain?
Jaquaia
11-01-21, 05:28 PM
It was fine until I made T's bed. I asked him to take his teddies off and he didn't so I had to stretch for them.
Stella180
11-01-21, 06:20 PM
Is the house a bit warmer now?
Jaquaia
11-01-21, 06:23 PM
It is. Too warm in some rooms!
It was fine until I made T's bed. I asked him to take his teddies off and he didn't so I had to stretch for them.
Maybe next time you leave it until he is home and he can do it either on his own or with you? Then he gets the consequences, but not being told off, but actually maybe if he saw how much it helped if he did x y z then he might want to do more? What you ask? Positive reinforcement maybe? Try turning the tables a bit?
Jaquaia
11-01-21, 09:36 PM
I'm not sure it will make much difference tbh but J is ringing the drs tomorrow so hopefully we can get some support in place
It might make things easier for all of you...
Jaquaia
11-01-21, 10:42 PM
Fingers crossed. We're sat discussing your idea at the moment
Strugglingmum
12-01-21, 08:16 AM
Hope the wrists are easier today. X
Jaquaia
12-01-21, 08:32 AM
Thank you. They're stiff so back to compression gloves today I think. My inflammation levels have doubled from last month so there has been an issue.
When I read how your inflammation is going I find it terrible. I can relate a little as I am also prone to inflammation and at times its some of the worst pain I have experienced so far. I hope the rest of the day will be a bit better for you (bear)
What about calling your rheumy team? Could you need to up your methotrexate or need some steroids or something?
Jaquaia
12-01-21, 09:50 AM
My mum can't get through and she's been without her biologic for 3 weeks! I'm ok, my levels aren't massively high so I can manage it!
Wow, how come she's been without it?
But if you could take something to make it easier, why wouldn't you?
Jaquaia
12-01-21, 10:15 AM
Supply issues apparently!
I don't think it's bad enough to bother the rheumy team or need steroids but I do take ibuprofen when my levels are a bit higher than normal. I find that helps with the aching and any pain quite quickly. The cold isn't helping.
Supply issues? Ahh, the good old "it's Brexit's fault" line? Alas, I've heard it lots of times too....
Just be careful, and tbh if it's causing you problems then it's definitely worth contacting them, and you definitely couldn't be a "bother" at all...
Jaquaia
12-01-21, 12:52 PM
I promise I will be careful. I've asked J for help to make our bed, he wouldn't even let me hoover the other day, he took the hoover off me! And I carried a bag of shopping on my forearm rather than in my hand and J wouldn't let me take any more then that! Plus he's only back at work tomorrow then it's his long weekend so it's not as if I have a lot of opportunity to get up to no good! He's a bit bossy really! Been told off loads for not drinking enough too. So I'm being good
Stella180
12-01-21, 12:56 PM
Being Good? I wasn’t sure those words were in your vocabulary lol
Jaquaia
12-01-21, 01:08 PM
I can do good!!!
Stella180
12-01-21, 01:38 PM
Good at not doing as your told. Good at being bad. Hehe. Nah to be fair you are good at being my friend. I’ll give you that.
Jaquaia
13-01-21, 05:27 PM
Good at not doing as your told. Good at being bad. Hehe. Nah to be fair you are good at being my friend. I’ll give you that.
Right back at you!
Just be careful, and tbh if it's causing you problems then it's definitely worth contacting them, and you definitely couldn't be a "bother" at all...
Funnily enough, I've just had a phone call offering me a face to face appointment with my consultant on Saturday!
I'm so glad he's taking care of you!
Hooray for the appointment! Be honest - and do not downplay how much pain and discomfort you've been in. Do not be a martyr...
Jaquaia
13-01-21, 05:43 PM
Would I???
Jaquaia
13-01-21, 06:49 PM
Pft!!!
She’s right, you know .....
Jaquaia
13-01-21, 07:06 PM
Pft!
To be honest, there hasn't been a huge amount of pain, mainly discomfort. Fatigue has been the biggest issue. And I am honest as I'm aware of how much damage it can do if not treated properly.
Good. Make sure you are. Can J go with you?
Jaquaia
13-01-21, 08:58 PM
He will be as I need a chauffeur but he has to wait in the car. I'm ok on my own, my rheumy is lovely and I'm at the small hospital in Beverley instead of the big hospital in Hull so it should be fairly quiet too.
Good.
Morning love, how are you today?
Jaquaia
14-01-21, 10:41 AM
I'm ok, on a bit of a go slow this morning and my wrists are aching so going to take it easy today. That and J is on his long weekend and he's bossy!
Bossy in a good way I hope... ;)
Jaquaia
14-01-21, 10:49 AM
Yes. I know he's only bossy because he loves me. He doesn't like seeing me in pain/discomfort as he can't fix it so he resorts to trying to make me rest.
And that's how it should be....
Hunni, what would you say if I kept referring to how I’m feeling as ‘discomfort’? I’m concerned you’re playing it down to yourself.....
Jaquaia
14-01-21, 01:03 PM
I'm not trying to play it down. It is uncomfortable but it's something I can live with. I can manage it, I just need to adjust how I do things and use the supports I've been given. I'm taking paracetamol and ibuprofen when I need to too, but heat actually helps more. And I suppose when I see the state my mum gets into with her hands wrists I don't think mine is too bad.
That's like saying that because someone else has it worse then you're ok..... Maybe they could do something to help now if things are "uncomfortable" which in turn might prevent it from getting as bad as your Mums?
Jaquaia
14-01-21, 01:47 PM
Pot meet kettle :P
I think it's just a mini-flare, until this month my inflammation levels had been going steadily down. Chances are she'll increase my meds again.
OOO get you! :) (rofl) Maybe....
Stella180
14-01-21, 05:20 PM
Definitely
Jaquaia
14-01-21, 05:21 PM
I think that is pretty unanimous! (giggle)
Jaquaia
14-01-21, 07:38 PM
Just checked my online records and my smear has come back clear! (party)
Pfft!
Yay for clear smear! :)
Jaquaia
14-01-21, 08:56 PM
I've started chapter books with A!!! Absolutely wasn't an excuse for me to start reading Roald Dahl despite having 2 books on the go! (angel)
Oh yay! What book are you starting with?
Jaquaia
14-01-21, 09:50 PM
The Twits. I thought we'd start with the shorter ones and see how she gets on with it. Plus I love Quentin Blake's illustrations.
Brilliant one to start with! There's so many to enjoy together!
Jaquaia
14-01-21, 10:29 PM
I have the full Chronicles of Narnia collection too. Her mum doesn't read bed time stories as she's "too old for them" but I think that's rubbish. So tonight we started with the normal picture books and a few chapters of a slightly older book. She also loved the Revolting Rhymes animation so I thought Roald Dahl would be a good start.
Awesome news re your smear :)
Horrible histories?
Jaquaia
14-01-21, 11:03 PM
T has those so we can certainly try them. And David Walliams and Diary of a Wimpy Kid
To old for bedtime stories? What rubbish! Jen still has bedtime stories but she reads them to Zoe instead. But it's only been a few months since Z read them to J, and she's nearly 9. I think stories help kids to relax.
Jaquaia
15-01-21, 07:45 AM
I'm starting Harry Potter with her when she's a little older. I wouldn't care if T came in for those!
Jaquaia
15-01-21, 09:11 AM
Bedtime stories are awesome!
Stella180
15-01-21, 09:50 AM
I never had bedtime stories. Not that I can remember anyway.
Strugglingmum
15-01-21, 10:15 AM
I never had bedtime stories either and to be honest my kids didnt have bedtime stories either. By the time it was bedtime with the 3 of them so close in age and just quite hyper, I was done with the day..... bed = sleep. They could lie in bed and read themselves and even in the cot I gave them cloth books but I was done for the day.
However we did have at least an hour every day when we snuggled up on the couch and read books together. They took it in turns to choose a book and as they got a little older we read simple chapter books but to be honest by the time they were 7/8 they read avidly themselves and just wanted to read their own books as they had very different tastes although Michael Murpurgo in those early days was a huge hit. We used to have to go to the local library twice a week to keep up with the demand for books.
Jaquaia
15-01-21, 10:16 AM
I don't remember having bedtime stories either.
SM, that sounds awesome to me!
Left hip is hurting today, don't know if I've tweaked it but keep getting a sharp pain.
I didn't have bedtime stories. My kids did and didn't, they're all close in age so we used to all snuggle in my bed and share a story together. One they all loved was Charlotte's Web!
If it hurts can you pace?
Jaquaia
15-01-21, 12:31 PM
I've been to do my mums meds, they've upped her amitriptyline and added in baclofen so had 4 weeks to do. Is it just me who cuts their fingers on the tablet strips?
Heading home now and will rest. J won't let me do much more!
Stella180
15-01-21, 01:22 PM
The edge of those packets can be like razors. It’s like a paper cut on steroids.
Have you got a pill popper outer?
Glad you're resting!
Jaquaia
15-01-21, 01:36 PM
The edge of those packets can be like razors. It’s like a paper cut on steroids.
And then add sanitiser into the equation and it's a form of torture!
Have you got a pill popper outer?
Glad you're resting!
No but it could be something I need to look into. Grabbed some bits while I was there so now have my glasses my friend did for me, my unicorn mug, my dressing gown my nana bought me and my Jane Austen set!
When crps spread to my hand, Suzi recommended a pill popper outer. It makes a huge difference!
Jaquaia
15-01-21, 01:57 PM
I will definitely look into it. It will probably make it quicker too as it took me nearly 2 hours today.
Stella180
15-01-21, 04:08 PM
£2.99 on Amazon.
I've been to do my mums meds, they've upped her amitriptyline and added in baclofen so had 4 weeks to do. Is it just me who cuts their fingers on the tablet strips?
Heading home now and will rest. J won't let me do much more!Do you mean the blister packs? well they don't just pop out...I have to get my thumb nail and pierce them first. they're a pita!
And Ami are tiny and fiddly!!
Jaquaia
15-01-21, 05:13 PM
My mum has just been put up to 50mg so they're a bit bigger and easier to deal with.
Starting block 3 of my counselling module tonight. It's going to be quite tough at times, I can tell that as the first activity is self-care...
Ahh I take 75 and they insist on only giving me the little 25s....
Self care? You mean, that thing you're REALLY good at? (rofl) (rofl) Maybe it'll be good for you?
Jaquaia
15-01-21, 06:00 PM
I can do self-care!!!
(rofl) (rofl) (rofl) Only when you're made to!
Stella180
15-01-21, 06:44 PM
It’s more like guided self care lol
I didn’t realise 25s were so small!
Jaq, self care, really??? Maybe I should dedicate my Thursday fb posts to ‘Supermod extraordinaire’ (rofl)
Stella180
15-01-21, 07:13 PM
Try quetipine. They are tiny little things as well.
Jaquaia
15-01-21, 07:34 PM
:P to all of you!!!
OldMike
16-01-21, 02:53 PM
Do you mean the blister packs? well they don't just pop out...I have to get my thumb nail and pierce them first. they're a pita!
I pop them out quite easily pills that is trouble is they're apt to flirt off the worktop and disappear.
Jaquaia
16-01-21, 03:00 PM
Well that was fun! J forgot I said hospital and started driving to our doctors. My wrists are aching but she couldn't feel any inflammation, I had to point out that my inflammation levels had doubled as she hadn't looked at my results. She wants me to reduce hydroxychloroquine to 3 times a week and keep the methotrexate as it is.
Why are you reducing the hydroxy? Do you feel that she listened to you? Can you try to see someone else?
Jaquaia
16-01-21, 03:50 PM
Because it can cause problems at the back of the eye. She did say if the stiffness continues then to get in touch and they'll look at upping the methotrexate again
Stella180
16-01-21, 04:11 PM
That doesn’t sound very pro active.
Will you get back in touch with them if it continues/worsens?
Jaquaia
16-01-21, 05:14 PM
I'll attempt to! She did agree that my hands were colder than they should be and her solution was long sleeves and wear gloves. Well thank you Sherlock! I assume she was thinking Raynaud's and ruled it out when I said my hands don't change colour.
That's mad! Doesn't sound like you were listened to much at all...
Jaquaia
16-01-21, 05:20 PM
Our dining table is next to the radiator and I sit at it to study yet can still have cold hands. Not all of the time but fairly often just lately.
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