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Paula
02-06-20, 03:48 PM
It’s been really tough to see my way out of any of the rubbish that’s come my way recently. I’m getting there but it’s still an uphill struggle, not helped by the fact that I’m feeling like this mainly because of meds - and it’s therefore out of my control. And I’ve been angry, which is not an emotion I feel comfortable with. But yesterday I was able to spend an evening with my baby girl, and that felt wonderful (until she left, and I cried), and I’m going to try to hold onto that chink of light

And Si and I have decided I’m stopping the Topiramate - I haven’t heard from neurology and I’m done waiting, I need to get better. It may be the wrong decision but it can’t be any worse than what’s already happened ....

Stella180
02-06-20, 03:59 PM
So glad you had a good time with your lass. How long was she with you? I’m sure it wasn’t enough and it must have been devastating for you not being able to hug her. When do you see her again?
As for your meds I’m not sure what the best thing is to do. Obviously stopping meds without doctors instruction isn’t advised however in your situation staying on the meds is a cause of greater anguish so I totally get why you came to that decision.
How is that troublesome pooch of yours doing? Does he like his new bed that you upgraded for him?

Paula
02-06-20, 04:04 PM
Katie’s working 8-6 this week so I think she’ll be too tired to pop over again, hopefully will see her at the weekend.

Jax is sooooooo energetic! He’s hilarious :). He loves his new bed - it lives outside the study so he can be close to Si even when he’s working lol

Stella180
02-06-20, 04:27 PM
So he’s a mans dog then? How are you spending your days?

Paula
02-06-20, 05:35 PM
He’s absolutely hero worshipping Si, racing up and down the stairs after him. Don’t get me wrong, he loves me and Jess but Si is his world

I’m doing what I can each day. It’s not much but it’s more than I was managing last week

Suzi
02-06-20, 07:07 PM
Paula, I think you're amazing. You are sounding more coherent than you have done. I think that under the circumstances I totally understand why you want to stop the top, and I'm glad you've talked it through with Si. You are both sensible and I know you won't have come to this decision lightly, but your body can only handle so much at once and maybe this is just too much right now?

Paula
02-06-20, 07:34 PM
Si had been waiting for me to ask him what he thought - he wanted me to come off it a week ago! And yep, definitely too much right now. Everything hurts

Suzi
02-06-20, 07:47 PM
You can only cope with so much. Even wonderwoman would have crumbled before now with what you're going through.....

Stella180
02-06-20, 08:18 PM
Paula is Wonder Woman!

Paula
02-06-20, 08:35 PM
I’ll take that! Gal Gadot ;)

Suzi
03-06-20, 08:29 AM
How are you today?

OldMike
03-06-20, 09:40 AM
Just been catching up on your thread Paula it's good that Katie can now pop round for a chat :)

Paula
03-06-20, 11:22 AM
How are you today?

I’m ok. I’m going to try to do some rock choir practice - last time I tried I got really dizzy so I’ve kept well away. I’m also going to look into getting hold of my medical records

Suzi
03-06-20, 01:58 PM
Good for you!

Paula
03-06-20, 02:47 PM
I’ve now lost 1st 6lbs since 6 March and it’s really showing. I was having a conversation with mum this morning about how I’m looking so much slimmer - except my tummy. She ‘reminded’ me that women of a certain age tend to keep a tummy ..... ouch

Stella180
03-06-20, 04:42 PM
Women of a certain age lol

Paula
03-06-20, 04:54 PM
I kindly failed to point out that she’s the mother of a woman 9f a certain age ....

Stella180
03-06-20, 05:59 PM
How dignified of you lol

Suzi
03-06-20, 09:13 PM
Lol! Well done you!

Paula
05-06-20, 11:20 AM
Had a call from neurology this morning. Consultant agrees I need to stop the topiramate and will push the other consultant for an appointment.

Suzi
05-06-20, 01:56 PM
That's brilliant news! You feeling any brighter?

Paula
05-06-20, 02:54 PM
Up and down, today I’ve been having dizzy spells so it’s a quiet day....

Suzi
05-06-20, 03:51 PM
Is that from stopping the top.?

Paula
05-06-20, 04:20 PM
I think so. I am getting there, it’s just taking time

Suzi
05-06-20, 04:59 PM
As long as you're getting better bit by bit love.

Strugglingmum
05-06-20, 08:49 PM
(panda)

Paula
08-06-20, 10:32 AM
I’m going to try to do some study today :)

Stella180
08-06-20, 10:38 AM
I’m guessing you’d left that alone for a while with all that is going on. Hope you get to focus of your studies.

Suzi
08-06-20, 12:10 PM
Hope you're able to study today love.

Paula
11-06-20, 11:08 AM
5000 jobs to go in Centrica, though we won’t know for 6 weeks whether Si is safe.....

Suzi
11-06-20, 01:29 PM
Oh that's awful! Just what you don't need, more worry....

Paula
11-06-20, 01:41 PM
I’m going to try very hard to not worry about it until the 6 weeks is up. Not sure how successful I’ll be though lol

Suzi
11-06-20, 03:19 PM
You know I'm here for you if you want someone to talk to...

Stella180
11-06-20, 03:30 PM
And I’m always ready to make you laugh when you least expect it ;)

Paula
12-06-20, 03:17 PM
My cousin, with cancer, has just found out he has Lynch Syndrome. It’s a genetic mutation that greatly increases the risk of certain cancers like bowel, womb, ovary, pancreas etc. On the plus side it means he might be eligible for a drug trial. On the huge theres a 50/50 chance his kids could have it. We have to wait for them all to be tested as we don’t know whether it’s our side of the family or his dads....

Suzi
12-06-20, 03:34 PM
Wow, that's tough... Are you OK?

Paula
12-06-20, 03:49 PM
I think so. He has just been told he’s eligible for the trial. As for the rest of it, we just have to wait and see.

Suzi
12-06-20, 04:01 PM
That's good news!

Paula
12-06-20, 04:39 PM
As well as having his entire bowel removed, the op showed that every lobe of his liver is riddled with cancer hence why they couldn’t operate and chemo would only buy him time. This new drug has been fast tracked because of covid and targets the proteins in the mutant cells, killing them off and preventing them multiplying. So they’re hoping, with chemo, the treatment can actually stop the cancer in it’s tracks

Suzi
12-06-20, 05:44 PM
That would be absolutely amazing if it does what it's meant to. A complete game changer for so many with cancer.

Paula
12-06-20, 06:03 PM
Absolutely!

Strugglingmum
12-06-20, 06:50 PM
Wow that sounds like an amazing trial. Hope he gets a chance from it

Paula
15-06-20, 10:16 AM
MUM AND DAD ARE VISITING ON SATURDAY (party)(party)

Suzi
15-06-20, 10:31 AM
So pleased for you!

I was going to ask how you are today, but seeing the news you've just posted means that you'll be very happy and excited! But apart from that excitedness, how are you doing?

Paula
15-06-20, 10:42 AM
I’ve lost another lb, Stella posted Wham, and mum and dad are coming! It’s been a good day so far! Otherwise, I’m ok generally. I’m still getting the occasional bout of lightheadedness but I feel tons better.

Stella180
15-06-20, 10:47 AM
I’m glad a bit of wham has brightened your day. That’s great news about the rents visiting. How is that going to work for you guys?

Paula
15-06-20, 11:49 AM
Plenty of chairs at suitable distance in the garden - and they’re bringing their own picnic

OldMike
15-06-20, 12:11 PM
You can't beat a bit of Wham, Paula glad you're on the up (panda)

Suzi
15-06-20, 03:57 PM
Thank you! The colourful crutches arrived today! They are awesome! Thank you! :)

Paula
15-06-20, 06:04 PM
My pleasure :)

Suzi
15-06-20, 08:47 PM
So how are you doing? Excitement worn off a bit?

Paula
15-06-20, 09:17 PM
I’m fine, even went for a longer than usual with Si and Jax this evening ;)

Suzi
16-06-20, 10:16 AM
You never cease to amaze me you know... You're epic.

Paula
23-06-20, 02:58 PM
I’m equal parts furious and upset. I’ve just got a letter from the government telling me guidance on shielding was changing so things will get easier for me. They never told me I should be shielding for the last 3 months - including social distancing from Si and Jess ......

Stella180
23-06-20, 03:41 PM
Why am I not surprised by this? Thankfully you as a family have been incredibly sensible and cautious so in that sense you have nothing to worry about. I still think doing what it right for you is more important than what BoJo and his band of clowns are telling us anyway. Anyone with half a brain can work it out cos in society people have different needs so blanket rules can’t work for everyone. I still don’t understand how you can congregate in a pub but can only visit one other household. You can go to a restaurant but not a gym? I really don’t understand the logic being used.

Suzi
23-06-20, 03:58 PM
Oh hunni, I'm so cross on your behalf! I think the whole thing has been amazingly mishandled from start to finish!

Paula
23-06-20, 04:44 PM
Apparently, I wasn’t supposed to be within 2m of Si or Jess....

Suzi
23-06-20, 06:13 PM
Nice of them to tell you that..... (panda)

Paula
25-06-20, 04:57 PM
I’m really struggling. CRPS and heat do not mix .....

Suzi
25-06-20, 05:28 PM
*sends ice, lollies, ice cream, more ice and someone lovely to stand and fan you*

Stella180
25-06-20, 06:41 PM
I’ve literally either lay on the bed or the sofa with the fan blowing full blast.

OldMike
26-06-20, 09:19 AM
*sends ice, lollies, ice cream, more ice and someone lovely to stand and fan you*

Send me some ice cream Suzi after Paula has had fill of course.

Suzi
26-06-20, 09:41 AM
How are you today gorgeous?

Paula
26-06-20, 01:51 PM
I’m ok. Was up at 5.30 this morning though, no idea why, so I’m going to try to study but not expecting much from my brain ;)

Stella180
26-06-20, 02:33 PM
You have an amazing brain and even running on low power you are awesome.

Suzi
26-06-20, 02:44 PM
How's the studying going? Are you staying hydrated and with plenty of rest breaks?

Paula
26-06-20, 06:10 PM
Fully hydrated, lots of mini breaks and sat under the parasol in the garden doing it, so it was nice. And Katie surprised us with a quick visit too :)

Suzi
26-06-20, 06:18 PM
YAY visit from Katie!

Glad you're taking it gently and being kind to you love. It's important.

How's the CRPS playing with the heat today?

Paula
26-06-20, 07:18 PM
There was a lovely breeze in my garden, so the CRPS behaved better ;)

Suzi
26-06-20, 07:32 PM
Good, I'm glad... How did the studying go?

Paula
26-06-20, 09:07 PM
Good. And I’ve ‘booked’ the study tomorrow so I can use the big screen (giggle)

Suzi
26-06-20, 09:09 PM
I assume you have air con or at least a fan in there?

Paula
26-06-20, 11:25 PM
It’s going to be cooler tomorrow.

Stella180
27-06-20, 12:04 AM
I bloody hope so! I heard a rumour we have rain tomorrow around here and I might just go sit outside and enjoy the downpour.

Paula
27-06-20, 10:26 AM
It’s been pouring down all morning. Isn’t it lovely?!

Suzi
27-06-20, 11:09 AM
Isn't it just!

Hope the studying in the study is working well today, but that you're also taking breaks and pacing....

Paula
29-06-20, 01:12 PM
I am ever so slightly excited. My cleaner is coming back next Monday! I’ve missed her sooooooooo much

Suzi
29-06-20, 01:29 PM
Lol! Masks and gloves on for both of you then?

Apart from that, how are you doing love? Meds now sorted?

Paula
29-06-20, 01:49 PM
Meds now fine. Life is getting back to normal ;)

Stella180
29-06-20, 01:57 PM
I wish my cleaner would hurry up and come back :(

Suzi
29-06-20, 04:27 PM
I'm so pleased for you love.

Strugglingmum
29-06-20, 05:58 PM
Gland you are feeling better

Suzi
06-07-20, 08:51 PM
You've been really quiet.... Are you OK?

Paula
06-07-20, 09:18 PM
I’m ok. Though I saw the ophthalmologist today and there’s been no change in the pressure on my optic nerves. I’m disappointed as I’d hoped my weight loss was going to help.

Suzi
07-07-20, 09:04 AM
Oh hunni I'm sorry. What happens next?

Paula
07-07-20, 10:58 AM
Wait for the second opinion and monitor. Though, if I have any problems with my vision, I’m to contact them urgently.

The round of redundancies at Centrica hit the level above Si today. His boss is going, which makes it even more of a worry for the next round -Si’s level

Suzi
07-07-20, 01:14 PM
Oh love, I'm sorry... When will Si hear? I hope he's safe though.. I assume he's looking around just as a back up plan?
Any idea when your next opinion will be?

Paula
07-07-20, 01:33 PM
I’m not sure when the next round is - though I suspect it’ll be a 6 week consultation. As for the second opinion, no idea ....

Suzi
07-07-20, 01:39 PM
I hate waiting on other people for things... (panda) How's Si feeling about it all? Is he talking?

Paula
07-07-20, 06:33 PM
Yeah he is. Hes trying not to worry too much yet but is obviously worrying itms

Suzi
07-07-20, 07:43 PM
I feel for him...

EJ
07-07-20, 09:22 PM
I’m sorry for you both xx

OldMike
09-07-20, 08:51 AM
It's a worrying time with covid-19 lots of jobs will be lost, I hope Si is one of the lucky ones and keeps his job. Paula is there any medication that would reduce the pressure on your optic nerves?

Paula
09-07-20, 09:11 AM
Paula is there any medication that would reduce the pressure on your optic nerves?

Yes, there’s 2. Both of which I’ve had nasty reactions to. So, atm, I’m taking a diuretic which isn’t ideal and doesn’t seem to be working but they don’t want to take me off it until they’ve figured out what’s going on

Suzi
09-07-20, 09:55 AM
How you doing love?

Paula
09-07-20, 10:06 AM
Plodding on

Angie
09-07-20, 10:26 AM
(bear)

Suzi
09-07-20, 10:57 AM
Plodding on

What's up? You sound low and not so sparkly... want to talk about it all?

Paula
09-07-20, 01:44 PM
I’m fine. We’ve had some good news - Jess goes back to work Monday, we were all convinced her employer was folding - phew :)

Suzi
09-07-20, 01:58 PM
YAY! Well done Jess! :) About time you had some good news!

Stella180
09-07-20, 03:22 PM
That’s great news for Jess.

Paula
13-07-20, 08:12 PM
*in flare* :(

Stella180
13-07-20, 09:13 PM
That sucks big time :(

Suzi
13-07-20, 10:07 PM
(panda)(bear) Can you pace and be really kind and gentle to you?

Paula
14-07-20, 10:18 AM
(panda)(bear) Can you pace and be really kind and gentle to you?

I am, no choice. I woke up this morning and my leg from knee to toes looked like it had been boiled. So today I’m just doing cross stitch and watching tv

Suzi
14-07-20, 02:03 PM
Ouch. Glad you're pacing, but wish you weren't in pain... Flares suck.

Jaquaia
14-07-20, 02:49 PM
Sending gentle hugs (panda)

Paula
14-07-20, 04:51 PM
It’s spread to my neck now - why does pain in one bit always causes the rest of it to go? ....

Suzi
14-07-20, 07:59 PM
Oh that's horrid... Hope it leaves you soon lovely.

magie06
15-07-20, 02:19 PM
Are you resting today?

Paula
15-07-20, 02:45 PM
I’ve had a zoom meeting this morning and a friend is coming over this afternoon. So not really. But I’m fine - hips still a bit sore but I’m feeling a lot better overall. I’ve also bought myself an all body pillow to see if that helps support me better in my sleep

Suzi
15-07-20, 03:30 PM
Hope you're having an enjoyable day, if not restful!

Strugglingmum
15-07-20, 05:03 PM
Glad you are feeling a bit better (bear)

Paula
16-07-20, 07:41 AM
Today is definitely a self care day - I’m having a manicure and pedicure, for the first time since before lockdown (party). I’m thinking bright red!

Suzi
16-07-20, 09:49 AM
Woohoo! Happy mani pedi day! Definitely bright and cheerful!

OldMike
16-07-20, 10:00 AM
Day- glo pink would be my choice though I'm sure bright red would just as good :)

Suzi
16-07-20, 10:04 AM
With sparkles Mike? I think that'd be up your street! ;)

Paula
16-07-20, 01:56 PM
I’m out of practice with socialising. After 2 1/2 hours chatting, I’m exhausted..... ;)

Suzi
16-07-20, 02:39 PM
Rest this afternoon please... Your fingers and toes look really pretty!

Paula
16-07-20, 05:29 PM
Thank you :)

Erm, rest? I might have fallen into my study books.....

Suzi
16-07-20, 05:46 PM
Lol, are you enjoying them?

Paula
16-07-20, 07:39 PM
Loving it. But I’m shattered, Bone tired itms

Suzi
16-07-20, 07:50 PM
Makes perfect sense! Resting tonight and pacing tomorrow I hope?

Paula
16-07-20, 09:05 PM
Yeap. Ish. Cancelled zoom meeting but it’s my brothers birthday so I need to see him

Stella180
16-07-20, 09:27 PM
Happy Birthday to your bro.

Suzi
16-07-20, 09:41 PM
You doing anything nice?

Paula
16-07-20, 10:32 PM
We’re just going over for cake - it’ll be the first time we’ve seen them since lockdown

Suzi
17-07-20, 11:18 AM
How are you today?

Paula
17-07-20, 01:52 PM
I’ve taken it very easy so far today, I’ve been reading sat in the garden. I’m ok, recovering I think

Suzi
17-07-20, 02:24 PM
Good!!

Paula
17-07-20, 09:08 PM
Not feeling great tonight. Although I tried to keep covered as much as possible while in my brother’s garden, I think I’ve got a touch of heatstroke.

Jaquaia
17-07-20, 09:27 PM
Rest tomorrow?

Strugglingmum
17-07-20, 11:13 PM
Oh gosh it has poured here all day... although it is close. Hopefully you will feel better after a sleep

Paula
18-07-20, 08:45 AM
Rest today. I do feel a bit better this morning though

Suzi
18-07-20, 10:22 AM
Glad you're feeling a bit better and I'm glad you're having a rest day too.

Paula
18-07-20, 07:49 PM
Wow. Only just over feeling rubbish - that was 24 hours I’ll never get back ....

Stella180
18-07-20, 08:24 PM
Hey, a 24 hr turn around is pretty impressive so don’t knock it.

Suzi
18-07-20, 10:25 PM
Glad it's over.... (panda) (bear)

Paula
18-07-20, 10:27 PM
I’ve had my neurology (second opinion) through for 3 August. Have to admit I’m a touch nervous

Suzi
18-07-20, 10:28 PM
I can understand that, but we're all with you in spirit....

OldMike
19-07-20, 08:18 AM
(bear) (panda)

Suzi
19-07-20, 09:48 AM
How are you today love?

Paula
19-07-20, 11:53 AM
I’m ok, thankfully. We’re going out for lunch with the kids - my first time out doing anything other than medical appts and walking Jax. My anxiety over getting back to some normality has been an issue for the past few weeks so....

Stella180
19-07-20, 12:36 PM
Awww that’s great you’re going out for a family dinner. Enjoy it. You’ll be surrounded by the people you love to nothing to be anxious about. If only it worked that way. I’m sure you’ll have a lovely time

Suzi
19-07-20, 06:39 PM
Have you been and come back or are you going later? I'm proud of you, it's not easy trying to get to going out etc....

Paula
19-07-20, 07:21 PM
We’ve been out. I’ll admit I was very anxious but eventually relaxed and had fun. I even treated myself to Apple crumble ;)

Not sure how serious she is, but Jess is thinking about moving out ....

Strugglingmum
19-07-20, 08:00 PM
Glad you enjoyed yourself. xx
Can Jess afford to move out??? Mine keep saying they are wanting to move out yet here we all are.

Stella180
19-07-20, 08:07 PM
I didn’t move out until I was 24 cos I couldn’t afford it. Even then we (me and my partner at the time) needed two incomes to do it.

Paula
19-07-20, 09:40 PM
She’s talking about a houseshare. Actually, Jess is probably the most fiscally responsible of all of us ;). I actually bought my first house at 19 .....

Suzi
19-07-20, 10:51 PM
How do you feel about the prospect of her moving out?


BTW am really impressed you went out and had some fun!

Paula
20-07-20, 08:46 AM
Ermmmm, I’m torn really. I actually think it’d be good for her - she’s such an introvert, it might be good for her to be renting a room as it might mean she’ll socialise a bit more. But she’s my baby .....

Suzi
20-07-20, 08:57 AM
I totally see your dilemma! It's so hard... But you've done an amazing job of raising two intelligent, strong, powerful (and beautiful) young women. Trust in the job you've done, then fill the spaces with more rescue greyhounds!

Stella180
20-07-20, 09:57 AM
Suzi are you suggesting Paula should swap her daughter for a dog? If so I agree, more puppies!!! (rofl)

Suzi
20-07-20, 11:50 AM
Not "replace".. Recycle the space ;)

Paula
20-07-20, 01:08 PM
More puppies!!!! What an awesome idea!

So, as I’ve been feeling slightly under the weather all weekend, and as I’ve got the house completely to myself, I made the decision to have a chill day. I’ve been reading a book in the garden all morning and now I’ve just got to decide whether to continue that strenuous occupation or watch Warehouse 13 ;)

Stella180
20-07-20, 01:41 PM
Warehouse 13 is wicked! Definitely watch that.

Suzi
20-07-20, 01:54 PM
See, more puppies - it's the answer to pretty much everything!

OldMike
22-07-20, 09:09 AM
More puppies is a great idea as Jax needs another friend ;)

Paula
22-07-20, 09:53 AM
I’ve booked an osteopath appointment for next Wednesday, to try to sort out my hip. Should be interesting - he is the only man I’ve ever met that can make me blush. He’s just got this lovely way about him that makes almost every woman in the vicinity melt ;) He doesn’t even know he’s doing it lol and it works on all ages - my mum, me, Katie and everyone else I know that’s been to see him!

In other news, both my twin nephews (aged 15) have come out, which has had the effect of getting Jess to talk about her sexuality at last. It’s been about 4 years since she told us she’s gay and, other than the very occasional comment, she just hasn’t wanted to say much. Not that it’s something that needs ‘discussing’, I just didn’t want her to feel she couldn’t talk to us. But she even mentioned something in front of Katie’s boyfriend the other day so it seems she’s finally comfortable with it all :)

Stella180
22-07-20, 10:01 AM
I hate the fact that anyone has to “come out”. You don’t get straight kids sitting down to have the conversation explaining that they like the opposite sex.

Suzi
22-07-20, 10:48 AM
That's amazing! Well done Jess!
Fern's come out as being non binary properly last week. Fern has decided that their preferred pronouns are they/them etc we keep slipping up, but we're working hard on it. Fern told Marc's sister at the weekend - they've decided that they are only going to tell people who are actually important to them so not nannies....

Stella180
22-07-20, 11:26 AM
Now that is confusing for me. They/them suggests more than one so to use in the sense of a singular person feels weird. I’m very easily confused when it comes to gender identification and so much I don’t understand.

Suzi
22-07-20, 12:16 PM
It's not something I fully understand, just that Fern doesn't feel like she fits into "female" or "masculine" sometimes she's more f than m, other times it's the other way round. They've been hinting at it for a while, and kind of mentioned it, but this is the first time it's a definite. We're very proud.

Paula
26-07-20, 09:44 AM
We went out for dinner with friends last night and had such a good time - I’m hoping I never take treats like that for granted, ever again! I even wore heels :) But it did make me realise we’re in a very different phase in our lives - 10 years ago all we talked about was our kids, last night it was all about our dogs (rofl)

Suzi
26-07-20, 11:17 AM
Dogs rule! :) I'm so pleased for you!

Paula
29-07-20, 01:56 PM
Back from the osteopath. Owwwwww

Strugglingmum
29-07-20, 02:03 PM
But is it a good owwwwww

Suzi
29-07-20, 03:10 PM
Hope it's a good ow love.

Paula
29-07-20, 05:06 PM
Not sure yet. The issue is (as suspected) because of the difference in how I weight bear on each side. There’s a muscle group in the pelvic area called *refers to the notes the osteopath gave me* Tensor Fascia Lata. That’s injured (and my quads are also really tight due to dealing with the injury). He massaged, manipulated and stuck needles in me. But he says it’ll be an ongoing issue as long as I can’t walk evenly. So I’ve got to give myself a deep massage for 2 minutes (laying down) every day - that didn’t make me giggle smuttily at all (giggle)

Flo
29-07-20, 05:12 PM
Give YOURSELF a massage??? Have you not heard of the saying "You don't have a dog and bark yourself";)

Strugglingmum
29-07-20, 06:35 PM
Give YOURSELF a massage??? Have you not heard of the saying "You don't have a dog and bark yourself";)

(rofl)

Paula
29-07-20, 06:54 PM
Give YOURSELF a massage??? Have you not heard of the saying "You don't have a dog and bark yourself";)

I know! He did ask if my husband would help but nope, Si hates massage - giving and receiving ;)

Suzi
29-07-20, 07:29 PM
Oh no! What about a roller? Someone I know makes lovely wooden ones like a foot massager if that helps?

Paula
29-07-20, 07:45 PM
That would help, how big are they?

Suzi
29-07-20, 09:51 PM
Just sent you a whatsapp :)

Paula
29-07-20, 10:26 PM
You’re a star (Kiss)

Suzi
30-07-20, 09:50 AM
How are you today gorgeous?

Paula
30-07-20, 10:25 AM
It’s a stair lift kind of day. Massaging last night was not fun. But the first few days after treatment are always sore - it’ll pass. I did layin this morning though :)

Suzi
30-07-20, 09:22 PM
(panda) (bear) How are you doing now love?

Paula
30-07-20, 09:39 PM
It’s eased the last couple of hours. I’ve been researching (at the Osteopath’s suggestion) stretches that might help ongoing - though they all say the same, that it’ll only be fixed if the way you’re walking is fixed. And that’s not going to happen. But at least I know what I need to do. I even bought exercise bands ;)

Tomorrow (I’m sooooo excited) I’m getting my hair coloured (party)

Suzi
30-07-20, 09:49 PM
What colour?

I'm dying mine tomorrow too ;)

What about pilates? Would that help at all?

Paula
31-07-20, 09:08 AM
I’m embracing the grey, so two toned dark and silver ;)

I’m a little wary about doing Pilates as, the last time I tried doing yoga at home, without supervision, I sent my whole body into flare......

Suzi
31-07-20, 09:16 AM
OOO sounds lovely!

No chance you could find someone who comes to you? Or you go to them locally?

Paula
31-07-20, 09:18 AM
My yoga teacher hasn’t got in contact with me. She’s in her 70s so I’m wondering if she’s decided not to carry on. I should call her, I suppose....

Suzi
31-07-20, 09:40 AM
Do, but then call others if she doesn't get back to you...

Flo
31-07-20, 04:45 PM
I had to stop Yoga because at the end of every session I felt nauseous! My balance is crap anyway and when we had to stand on one leg like a flamingo with other foot up to the side of the calf I kept falling over!!(rofl) Some people say that Yoga has changed their lives! It had the adverse effect with me!:s

OldMike
31-07-20, 07:25 PM
I had to stop Yoga because at the end of every session I felt nauseous! My balance is crap anyway and when we had to stand on one leg like a flamingo with other foot up to the side of the calf I kept falling over!!(rofl) Some people say that Yoga has changed their lives! It had the adverse effect with me!:s

I used to do a good impression of a flamingo putting on my underpants stood up one leg at a time nowadays I sit down to put my underoos on which apparently a sign of old age, what me old ;) (giggle)

Paula
03-08-20, 05:07 PM
Neuro appointment done. Boy I’m shattered.....

Soooooo, lots of tests including another eye scan. There’s still swelling of the optic nerves but he said it is less than it was. But, after questioning Si about whether I snore (which I knew I did) and whether I stop breathing in my sleep (Which I didn’t know I did) he’s referring me for a sleep study as apparently obstructive sleep apnoea can mimic IIH. He doesn’t want to change any meds at the moment and he’ll see me again after my next visual fields test in September.

Suzi
03-08-20, 05:46 PM
Oh wow, that sounds less scary than the IIH....
Are you resting?

Paula
03-08-20, 09:06 PM
It’s definitely something worth finding out about. So, it was a good appointment - it’s given me hope after 3 years of not getting on the top of this. But I’m exhausted.... however, after nearly a year since she left home, Katie invited her to her home this evening, for the first time. It’s been done up to sell and she finally felt it wasn’t such a pit she was embarrassed to show to us

Suzi
04-08-20, 09:44 AM
That's lovely that you got to go over. Sad that she has been embarrassed to show you previously though..

How are you today? Are you resting?

Paula
04-08-20, 01:59 PM
Sad that she has been embarrassed to show you previously though..

I know, I tried but she was adamant.

I’ve had a manicure this morning, this afternoon I’m aiming to study :)

Suzi
04-08-20, 03:54 PM
OO what colour nails?

Hope the studying goes well x

Paula
04-08-20, 04:42 PM
Pale pink with pink glitter on the ring fingers :)

Stella180
04-08-20, 05:56 PM
Okay I’m not into make up and stuff but I don’t understand why people have different design on one finger? What is the point?

Suzi
04-08-20, 08:29 PM
Lol...

Nice colour choice!

Paula
04-08-20, 09:10 PM
Okay I’m not into make up and stuff but I don’t understand why people have different design on one finger? What is the point?

Does an artist just paint a canvas in one colour? ;)

Suzi
05-08-20, 08:45 AM
Love that explanation! :)

How are you today?

Paula
05-08-20, 08:47 AM
I’m good ta

Suzi
05-08-20, 08:54 AM
What's on your agenda?

Stella180
05-08-20, 09:40 AM
Does an artist just paint a canvas in one colour? ;)

Ok fair enough. It still seems strange to me.

Flo
05-08-20, 09:43 AM
Any chance of a pic of nails?? They sound lovely. I'm no good with long nails....texts end up in a foreign language and laptop keyboard is a non starter. In my 20's and 30's my nails were long and hard and I could peel an apple with my index finger nail. Just thought I'd slip that one in while we were on the subject!!(giggle)

OldMike
05-08-20, 10:14 AM
Does an artist just paint a canvas in one colour? ;)

Some artists do typically Yves Klein who in his exhibition, 'Proposte Monochrome, Epoca Blu' (Proposition Monochrome; Blue Epoch) at the Gallery Apollinaire, Milan, (January 1957), featured 11 identical blue canvases, using ultramarine pigment suspended in a synthetic resin 'Rhodopas'.

We all new that of course (rofl)

IMHO you paint your nails with whatever floats your boat, bet they look great :)

Paula
05-08-20, 10:55 AM
Here you go, Flo. I can’t do long nails either, my nail beds are too short and it looks odd. But I do like them manicured.

https://i.ibb.co/RpWHFzh/B8-AF15-A1-D01-F-4197-9524-B9-F997999374.jpg

Suzi, I’ve got a zoom meeting/catch up with the team I work with at the hospital in a mo, the. It’s study...

Suzi
05-08-20, 11:49 AM
Nails look fab! Definitely pace with the meeting and study please?

Paula
05-08-20, 12:16 PM
I’ll be fine ;)

Suzi
05-08-20, 04:40 PM
How's it going?

Paula
05-08-20, 05:50 PM
Well, I’ve done the reading I planned to do but halfway through my body took over and I fell asleep for 2 hours!

Stella180
05-08-20, 06:30 PM
Me too!

Suzi
05-08-20, 08:18 PM
That was my plan, but it didn't happen! I'm planning an earlier night...

Paula
08-08-20, 02:24 PM
Si and I have had a lovely morning at a nearby antiques centre (well, I did - Si just came along for the ride). I am absolutely shattered but totally worth it

Stella180
08-08-20, 02:28 PM
Si was there to carry the credit card lol. Did you buy anything nice?

Suzi
08-08-20, 02:29 PM
OO Sounds like fun!

Paula
08-08-20, 02:35 PM
Art nouveau vase :)

https://i.ibb.co/6s6jzgw/B84-B6211-CB14-454-C-9-BD7-AEE25952-BFC6.jpg

Stella180
08-08-20, 02:42 PM
Wow! Nice.

magie06
08-08-20, 04:40 PM
That is beautiful.

Paula
10-08-20, 02:06 PM
I’m really struggling with the heat. Today, I went out for a coffee with a friend and I definitely wasn’t my sparkly self. I couldn’t wait to get home. Yesterday, I snapped at Si - I’ve been flaring lots and my foot was burning. He just said that it’s the heat, and my stroppy response was ‘knowing what it is doesn’t make it hurt less’! At this rate, everyone who loves me is going to put me in a room and leave me there.

Stella180
10-08-20, 02:28 PM
Not good mate. hot bothered and in pain is enough to make anyone snappy.

Suzi
10-08-20, 03:32 PM
I sympathise. I'm also snappy too. The heat is too much for me...

Paula
10-08-20, 06:14 PM
Once upon a time I was a heat freak - I’d spend every moment I could sunbathing. Not so much now

Suzi
10-08-20, 10:05 PM
Ewww, definitely not for me - although we were at the beach or in our pool at home (not a proper one, just one Dad put up each year cursing us as he did it and waited for it to fill)... My Mum used to like sitting in the sun though. Although not so much now.

Paula
10-08-20, 10:49 PM
I permanently looked like a native from the Mediterranean. But CRPS doesn’t appreciate sun, so the slight hint of colour I’ve got at the moment is it (and more attributed to freckles joining up than anything else ;))

Strugglingmum
10-08-20, 11:43 PM
It's not quite so hot here but still too warm for comfort..think mine has more to do with menopause than anything though... A says I'm like a boiler on full.
Theres a thought, Stella I could come heat your home for you... no bother then. Well actually I probably am just as prone to malfunction..... I definitely backfire!!(rofl)

Jaquaia
11-08-20, 09:13 AM
(rofl)

Paula
11-08-20, 09:15 AM
(rofl)

Suzi
11-08-20, 09:57 AM
(rofl) (rofl) I have no thermostat control - I can't regulate my own temperature at all which is rubbish..

What's on your agenda for you today Princess Sparkles?

Stella180
11-08-20, 10:24 AM
Theres a thought, Stella I could come heat your home for you... no bother then. Well actually I probably am just as prone to malfunction..... I definitely backfire!!(rofl)

I can’t move without backfiring so we’d make a right pair.

Paula
11-08-20, 10:41 AM
What's on your agenda for you today Princess Sparkles?

I’m off to see my best friend for the first time in ages! Her birthday is in March so she’ll be getting a very belated birthday present :)

Strugglingmum
11-08-20, 12:04 PM
Sounds lovely. Enjoy.

Stella180
11-08-20, 02:20 PM
Have a great time with your bestie.

Suzi
11-08-20, 06:55 PM
Did you have a good time love?

Paula
11-08-20, 07:04 PM
It was lovely. We sat in the shade in the garden and put the world to rights. I really, really love that woman and have missed her so much! I am shattered now though - the heat is rather draining .....

Suzi
11-08-20, 07:06 PM
So glad you had a great time! :)

Flo
11-08-20, 07:18 PM
(rofl) (rofl) I have no thermostat control - I can't regulate my own temperature at all which is rubbish..

What's on your agenda for you today Princess Sparkles?

Well I've got no filter! so we'll make a good team!!(rofl)

Suzi
11-08-20, 09:15 PM
We sure do love ;)

Strugglingmum
11-08-20, 11:01 PM
Glad you enjoyed your time. Heat's crazy though

Suzi
12-08-20, 10:15 AM
What's on your agenda today?

Paula
12-08-20, 10:33 AM
Hospital team zoom meeting, then lots of cross stitch. I’m banning myself from any revision until we get back from Bath ;)

Strugglingmum
12-08-20, 12:56 PM
I was on a zoom class this morning and also used the time to stitch on the pockets to the pocket shawl I'm making

Suzi
12-08-20, 01:34 PM
Sounds like a good plan Paula.
Nicely done SM :)

magie06
12-08-20, 01:35 PM
When are you going to Bath?

Paula
12-08-20, 02:10 PM
Sunday :)

Suzi
12-08-20, 08:23 PM
You're going to have a great time! Do you have any plans?

Paula
12-08-20, 09:24 PM
We’re going to the Giggling Squid for dinner Sunday and (as I’m such a caring wife) on Monday, which is our anniversary, we’re going to what Jess and Si called the ‘best pizza place in the world’. Even though I do not like pizza! We’re also visiting the Roman Baths on Monday. Other than that, we’re going to play it by ear as I’ll really be pushing myself anxiety wise

Suzi
13-08-20, 08:34 AM
Sounds like you've lovely things planned! You'll be fine. You and Si have got this!

Stella180
13-08-20, 12:46 PM
The Giggling Squid lol. That is a fab restaurant name.

OldMike
13-08-20, 03:42 PM
We’re going to the Giggling Squid for dinner Sunday and (as I’m such a caring wife) on Monday, which is our anniversary, we’re going to what Jess and Si called the ‘best pizza place in the world’. Even though I do not like pizza! We’re also visiting the Roman Baths on Monday. Other than that, we’re going to play it by ear as I’ll really be pushing myself anxiety wise

Shock horror you don't like pizza but everyone likes pizza ;) (giggle)

The Giggling Squid made me giggle have a great time which I'm sure you will.

Paula
13-08-20, 04:28 PM
Pizza is just dough with a bit of garnish

Strugglingmum
13-08-20, 05:00 PM
Pizza is just dough with a bit of garnish

Have to saying agree, not a big lover of pizza. Now give me a good burger.....

Paula
14-08-20, 10:48 PM
What a nightmare. Katie spent the evening with us, she sets off for home and comes across a dead cat. She’s in bits and Si is having to go 20 miles to the nearest emergency vets......