View Full Version : Chink of light in the darkness
OldMike
16-09-20, 10:34 AM
Paula not sure what a 'WIP' is but hope you soon become 'WIPless' does that even make sense are best leave one of these (panda)
How are you doing lovely?
Got a headache still but ok. I’m feeling up to doing something but I don’t think studying would be helpful, or cross stitch so I might try some needle felting.
Erm, I decided to watch Grease instead ;)
Strugglingmum
16-09-20, 06:11 PM
Sounds perfect;)
I’ve had such a headache all day. I’m really hacked off with this
Jaquaia
16-09-20, 10:14 PM
(panda)
Is the headache due to the removal of fluid? Of you sitting up more? Fluid increasing again?
How's the new medication doing?
Unfortunately, the headache now feels more like it did before my LP - so I think the pressure has already built up. But Si and I agreed to see how it goes for a bit. I’ve got a blood test today as the new meds potentially interacts with lithium. In terms of how it’s doing, given current evidence, I’m thinking not so well.....
Strugglingmum
17-09-20, 09:16 AM
(panda)
Oh love, you must be so frustrated - especially after how poorly the LP has made you. Is it worth calling the neuro and at least keeping them in the loop?
I might ask the nurse at my blood test later
Stella180
17-09-20, 11:30 AM
I’m really not liking any of this. I hate that you are going through this :(
That she couldn’t take my blood as, now my lithium is split doses, there hadn’t been 12 hours from dose to test. I should have thought of it but I spoke to reception the day after I left hospital. I’ve got another appt at 9 tomorrow
She told me to ring the neurologist when I got home. So I’ve left a message with his secretary
Oh that's frustrating!
I assume you haven't heard anything yet from the neuro?
How are you feeling about it all?
Right now my head hurts so much I can’t think beyond the next 5 minutes
Then should you not be heading back to hospital?
Stella180
17-09-20, 06:09 PM
Please don’t be stubborn and get back to A&E If that’s what it takes to get seen asap
Please look after yourself. And if going to A&E is needed Please go. You are worth every bit of attention (bear)
OldMike
18-09-20, 09:20 AM
(bear) (panda)
The headache is a dull one this morning. And I stupidly took my lithium so couldn’t have my blood test - I’ve got another appt on Monday at 8.30.
Oh bugger! Can you set a reminder not to take it?
Glad the headache is easier, but still keep an eye on it?
I’ll move the lithium out of my morning box.
I’ve spoken to the neurologist. He’s got the medical team at the hospital to agree to call me Monday to make an appointment to have another lumbar puncture - he wants to know my pressures before changing the meds. Of course, he’s told me to go up to a&e if things get worse over the weekend.
I’ve got an appt 8.30 Monday
Is that the appointment for the LP?
Stella180
18-09-20, 03:36 PM
Another lumber puncture!? Ah mate that sucks. There’s not a single thing about any of this that I like. Well maybe how strong you are dealing with all this. I know I’d be a complete wreck.
Is that the appointment for the LP?
Yep and they’re going to do my lithium bloods too, so I don’t have to worry about that.
Stella, I don’t like this either, and Si is even more (swear)(swear)(swear)(swear)ed off. But it is what it is and at least I’m getting awesome care, with a neurologist who is very proactive. It could be a lot worse
How do you feel about another LP when you aren't fully recovered yet from the last one.... Is Si worried?
I don’t like it but I’m struggling and the doctor won’t change my meds until he knows for sure what my pressures are doing. Si is concerned that we seem to be flailing in the dark but that is the nature of this condition, because no one really knows what causes it
I can see Si's pov, but your neuro seems to be doing what is best. Changing meds without knowing what's going on seems like flailing to me, at least this way - although it's really horrible for you - you/they know what they are dealing with....
Stella180
18-09-20, 09:05 PM
I totally get where Si is coming from. It’s worrying when you have to go through a big procedure like an LP twice in two weeks without having an answer. I know the potential consequences of not getting this under control which is why it scares me but as you say you are getting good care which is all anyone can ask and that’s a positive. I wish there was something I could do to make it easier.
Strugglingmum
22-09-20, 10:01 AM
Just leaving you some love and hugs. Xx(panda)
Well, yesterday was interesting. Mid morning 2 doctors came to see me to do the lumbar puncture - one of which was an consultant anaesthetist who had specialising in childbirth, ie epidurals which is essentially the same procedure as LP. Because the focus was on getting an accurate pressure reading, rather than draining the fluid, I had to lay on my side rather than sitting up. Laying on my side and curling into a ball is really hard because of my dodgy leg.
Despite many attempts, neither of them were able to find the space between my vertebrae and both managed to nick some vertebrae and nerves, which is as painful as it sounds. After letting me rest and have some lunch, another doctor came to see me. He did manage to find the right space but also went through a vein, which bled a lot and blood got into the tube - which stopped much CSF fluid getting into the tube and meant they couldn’t get an accurate reading though the doctor ‘thinks’ my pressures are ok. They decided to stop mucking about and leave it up to the neurologist to decided whether he wants another try but with ultrasound or X-ray.
I thought that was the end of the saga. But my lithium results came back in the afternoon. Turns out my new meds had caused my lithium levels to increase above safe levels and I need to reduce my lithium dose - and lithium toxicity symptoms can mimic IIH symptoms.......
I’m very sore and a little bit traumatised but that’ll pass. I may not forgive Si for pointing out that, if I hadn’t taken my lithium at the wrong time on Friday, I probably wouldn’t have had to have a lumbar puncture at all :/
Stella180
22-09-20, 12:00 PM
Ok so me being me, what do I take from this story. A little bit traumatised but that’ll pass. No no no!!! I’m not having that. You have a right to shout and scream and be upset by 3 doctors failing to carry out the procedure correctly and efficiently causing you pain and distress. You are entitled to be concerned about the toxicity levels in your body and the consequences of that. This isn’t just a petty mild annoyance and fobbing it off with terms like “it’s fine” “it is what it is” and “it’ll pass” don’t wash with me. What you have been through is real and “a little bit” traumatic. To ignore the validity of that with BS positivity can actually be damaging.
While I get what you’re saying, the reason the doctors had issues was because I was unable to get in the right position because of my leg. No, I’m not saying it was my fault, just that my condition made a difficult procedure harder. It’s not BS positivity, it’s my way of coping with all the crap I’ve had to deal with over the years. Shouting and screaming about it is just not my way - that would just make life harder for me. I am worried about the toxic levels but my dose has been reduced and, hopefully, my next blood test next week will show an improvement.
Stella180
22-09-20, 01:22 PM
There is positive and there is glossing over it. You are allowed to be upset. Did you have the same troubles with the previous LP?
Oh and by the way, Si is right. Don’t you hate it when that happens lol
I get it... There are procedures that are made so much more difficult for me because of my issues, doesn't mean that it's my fault either... Because of the state my lower back is in, when an anaesthetist tried giving me an epidural with Ben they hit the wrong place going in and weren't able to do it - the next top consultant anaesthetist I saw when I was pg with Hazel was horrified that someone had tried after looking at my back... He warned me never to have anything like that done without guiding via ultrasound or xray because all of my "markers" are in the wrong place. So I do understand - the same when I had my fibro diagnosis, but sometimes the shock of everything overtakes the shouting and creaming and stamping my feet....
What does Si think? I assume that you're bruised and sore today? Resting?
Erm, Si called them muppets (not to their faces lol) and told me I was too nice when I tried to defend the doctors..... I’m very bruised and sore and am yet to get dressed so definitely resting
Stella, I’m not glossing over it but I see no point in stressing myself out by throwing a hissy fit over it. The previous LP was fine - but that was because I was allowed to be in an easier position - but one which couldn’t get the exact correct pressure reading they needed this time
Lol at Si! :) I assume you're being looked after at home today? Sitting or lying down?
Tried sitting but feel bruised down to my, well, seat lol. So mainly lying
I'm glad you're resting...
Stella180
22-09-20, 08:31 PM
No harm in being horizontal ;)
Wishing you better Paula. Sorry you have been through so much these past weeks. You are so brave. Glad you are resting now and on the road to recovery xx
Yo Princess Sparkles, how're doing?
Sore still but not full body sore itms. Still going to take it easy today
I'm glad you're even a little less sore...
Did you take it easy?
Yeah, I’m a bit more sore this evening but I’m feeling better in myself - not wanting to burst into tears at the drop of a hat. But I’ll admit the last few weeks have taken a lot out of me emotionally
Jaquaia
23-09-20, 07:16 PM
That's not really surprising. You've had to deal with a lot!
Stella180
23-09-20, 07:17 PM
Of course it’s taken a lot out of you. I’d be worried if it hadn’t.
Strugglingmum
23-09-20, 07:40 PM
Its been quite a few weeks for you. Xx
I completely agree with the others. Are you going to take some of your own advice and carry on with some self care?
OldMike
24-09-20, 08:32 AM
Just been catching up on your thread Paula what a traumatic time you've had hope you are resting and Si is pampering you. (panda)
Hey, feeling less like a bruised pin cushion yet?
I completely agree with the others. Are you going to take some of your own advice and carry on with some self care?
Oh no, you can’t use my own words against me!
I’m ok today, a little bruised and sore but tons better than I was. I’ve had a lie in and I’m going to try to do some study today
I can, I have and I shall continue to do so!
Study is fine if it's done little by little and not pushing yourself too hard....
Strugglingmum
24-09-20, 10:37 AM
Hope today goes well for you. Little by little. X
Jaquaia
24-09-20, 10:51 AM
It's fun when you use Suzi's words against her too (giggle)
Stella180
24-09-20, 11:53 AM
Jaq you are the queen of using a persons words against them. It’s a dirty tactic and is virtually impossible to counter.
It's fun when you use Suzi's words against her too (giggle)
Pfft, that's just rude when you do that...
Jaquaia
24-09-20, 03:08 PM
(rofl)
Pfft, that's just rude when you do that...
Sauce for the goose and all that.
Well, either my brain’s not functioning on all cylinders atm or I don’t get ‘Doctrine of Man’. I was to summarise sections from 2 textbooks on the Image of God (imago Dei) and halfway through the second one, the book got metaphorically (it’s on Kindle) thrown across the room!
That sounds way above my level of brain function....
So, I’m finding today a struggle - emotionally. And I know it’s been a little difficult recently so I know it’s not surprising..... but I need to focus on something rather than yet more resting. So it’s going to be a study afternoon
What's happening emotionally? Is it a general emotion or worse than normal if you're watching something emotional emotions? itms?
It’s general, if I stop to think I’m going to fall apart itms. I know it’s just a reaction, I know it’ll pass, but I’m not enjoying it :/
Strugglingmum
26-09-20, 03:53 PM
(panda)
Offering support Paula. You are amazing as you come on here helping others me including. Sending love and support. Xx
Jaquaia
26-09-20, 06:14 PM
(panda)
Love and hugs from me too!(bear)
Pfft, it's going to be OK it's a blip. You've got this. Put some music on and cry it out if you need to.... I'm with you hugging you tight in spirit... Besides you aren't going to fall apart, I have so much gaffa tape I can stick you together... Love you chick.
Pfft, it's going to be OK it's a blip. You've got this. Put some music on and cry it out if you need to.... I'm with you hugging you tight in spirit... Besides you aren't going to fall apart, I have so much gaffa tape I can stick you together... Love you chick.
(Kiss)
Katie came over tonight to have some mummy daughter time, watching Strictly. That helped :)
Stella180
26-09-20, 10:38 PM
Sounds like a great way to spend a Saturday evening.
Strugglingmum
26-09-20, 11:40 PM
What a special girlie..... just like her mum. X
I’m ok, a bit emotional - the rector of our church is leaving today, after 34 years service. So I’ve been watching the service online, and there’s been tears.....
I’m going to attempt studying again today, and hoping the tech works
Strugglingmum
27-09-20, 11:28 AM
(panda)
Always sad when a minister moves on . X
Hope you manage some studying
I agree.....maybe you'll get a lady rev. or a young enthusiastic one who thinks outside the box!
Another morning at the hospital - bloods and visual field tests. Still, should actually be able to be home by lunchtime this time ;)
Sounds like a fun way of spending this morning..... Not......
How are you emotionally? Moodwise?
Stella180
28-09-20, 08:27 AM
You’re spending so much time there you must be on first name terms with all the staff by now lol
OldMike
28-09-20, 08:50 AM
Another morning at the hospital - bloods and visual field tests. Still, should actually be able to be home by lunchtime this time ;)
Hope all goes well and you don't have to wait too long (panda)
Strugglingmum
28-09-20, 10:02 AM
Hope all goes well. X
Well I’m home, which is novel.....
I’m a bit tearful - I didn’t need a doctor to tell me my visual fields test in my left eye didn’t go well. The area I had blurred vision, I didn’t see any of the lights in that bit of peripheral vision. In the short term, I’m still not going to drive, and wait to see a doctor
Jaquaia
28-09-20, 01:13 PM
(panda)
Stella180
28-09-20, 01:14 PM
That sucks.
I’m fine. Just been out for a walk to clear my head. There’s nothing I can do until I see a doctor and the only impact is not driving, atm. So, I can live with that
Strugglingmum
28-09-20, 04:15 PM
(panda)
Stella180
28-09-20, 04:26 PM
You’ll have have to make sure Si wears a suit and hat now he gets to be your chauffeur lol
OMG yes! He'd love that! (rofl)(rofl)(rofl)
Strugglingmum
28-09-20, 07:56 PM
Well has to look the part to drive a princess around.
Stella180
28-09-20, 08:46 PM
Exactly!!! Gotta be in uniform to transport royalty
I couldn’t agree more. My chauffeur is resisting the idea atm....
Stella180
28-09-20, 11:02 PM
A little something to get him started ;) https://smile.amazon.co.uk/dp/B07BSDH5WW/ref=cm_sw_r_cp_api_i_r0LCFbGP4RCSZ
Sexy chauffeur costume?
God no, I doubt he could think of anything worse!
(rofl) (rofl) (rofl) How are you this morning gorgeous?
I’m fine, though struggling to get going. Got my best friend over later so must get a wiggle on
Fine? As in, really OK or just glossing over everything with "I'm fine"?
Glad you're friend is coming over...
So, mum’s had her MRI results. She has extensive arthritis in her spine and some bony spurs. The main issue is she has two slipped discs in her lower back. One of the bulging discs is pressing on nerves and slightly on her spinal cord. She’s been given a few options and has decided to have surgery - though it’s not as dramatic as it sounds, apparently with this type of surgery she can be done and home in a day
Glad the MRI results have shown what issues there are and that there is a plan love... Although I also know how scary it is..
Stella180
29-09-20, 06:52 PM
Home it a day!? Wow that sounds impressive.
Strugglingmum
29-09-20, 07:07 PM
I'm glad there is a solution to some of the problem. Hopefully surgery will greatly reduce her pain
My neurologist has referred me to Southampton to have a LP under X-ray, so that he can get a clear idea what’s going on
Stella180
30-09-20, 05:34 PM
They should just fit you with a tap lol
Southampton always used to be a brilliant hospital for things like this.. You scared though?
No. It should be easier with X-ray. Si didn’t want me to take it up as I don’t have any symptoms now but I have said that this has been going on for 3 years and most of that time I didn’t have any symptoms. And I’m worried about my eyes. So, I want to take up any tests they want to throw at me - I need to know exactly what we’re dealing with
Will you have to stay in ?
No. It should be easier with X-ray. Si didn’t want me to take it up as I don’t have any symptoms now but I have said that this has been going on for 3 years and most of that time I didn’t have any symptoms. And I’m worried about my eyes. So, I want to take up any tests they want to throw at me - I need to know exactly what we’re dealing with
Very sensible if you ask me....
Will you have to stay in ?
I don’t know - I didn’t at my local hospital last week but I did when I had my first LP in Southampton 3 years ago.
Morning love, how are you today?
That doesn't sound happy and sparkly....
I’m ok, really, just a few things on my mind - expected really
Stella180
01-10-20, 06:14 PM
Wanna talk about it?
Strugglingmum
01-10-20, 07:31 PM
(panda)
Jaquaia
01-10-20, 07:42 PM
Always willing to listen lovely (panda)
Tell us what's going on? You know you'd say the same thing to me!
Well, Katie popped round which helped raise my spirits :)
Erm, well, I’m worried about my mum - logically we all know that the surgery is not the biggie it used to be, but it’s still spine surgery. And I know my dad is going to be like a very grumpy, very helicoptery kitten on hot coals, and will inevitably drive mum around the bend. And, yes, I also know we have no idea when this will happen, but that’s something else I’m worried about - she’s in agony.....
And, Si is not happy about this lumbar puncture. He doesn’t get why I should have to be put through that again. I’ve explained to him this is diagnostic and, given I’ve had little of that for 3 years, I’m not arguing. Also, my eyes are worrying me. But he’s still not happy. I’ve also told him it’s my decision, but that doesn’t mean he’s going to let it go any time soon.
Oh, and despite having no letter, I’m worried about my next PiP assessment as I’m pretty certain I’ll lose top rate and, therefore, my car - which I love..... which takes me to my next worry. I don’t know how much damage recent events have done to my sight, and I’m scared I’m never going to be able to drive or do cross stitch again.
And, breathe .......
Strugglingmum
01-10-20, 10:19 PM
Those are all very legitimate concerns. (panda)
Does it feel any easier to have laid them all out?
Stella180
01-10-20, 11:59 PM
So things aren’t really fine then? There would be a bigger problem if these things weren’t a worry for you. I completely understand why you’re concerned about your mum and your sight. PiP however, have you checked when your claim needs reassessing? I don’t think for one minute anyone with half a brain would think downgrading your mobility is appropriate.
Of course, there’s also the ‘minor’ worry over Si’s job. He should find out next week
My PiP is due 2021, but I know people have been reassessed early
OK, so in essence you have a lot of very valid and legitimate worries.... But you are also borrowing trouble.
Your Mum - Spine surgery is scary, but there's no reason it'll go badly for her and they wouldn't be talking about doing it day surgery if they had those kind of concerns - won't stop you worrying though..
LP - Si is right to be concerned, you've had a few issues with these and they've made you pretty poorly..... I can totally understand his point of view. However I can also see yours and I know what it's like to need to get that diagnosis so you can hopefully get the right treatment to actually treat what's going on...
PiP - It's going to happen - the assessment, but there's no reason you will lose your award, so let's worry about that one when that form arrives.
Si's Job - Is he still looking for something else?
Pfft *grumbles about using my words*
Si has ‘sent out feelers’ and is ‘keeping an ear out’. Thing is, at his level, there’s usually less comparable roles available. But he says he’s not worried. I’m starting to though I know we’ve got savings
Si is sensible, he's not going to hide things from you either. If he's not worried then can you take that pile off the "Things I need to worry about today" list and stick it for a later date?
He would, and has, hidden his worries from me - all the time.....
Hmm... Well that blows my argument out of the water then..... Tell him, he's a git from me!
You seem to have a lot on your plate at the moment. May I ask what your eye problem is? You have a great hubby, he's so supportive. Ian is a good guy but isn't a talker if things go wrong, it can be infuriating! Try and have a peaceful weekend.x
Yo Sparkles, how are you today?
You seem to have a lot on your plate at the moment. May I ask what your eye problem is?
The main danger from Intracranial Hypertension is that the increase fluid in the brain puts pressure on the optic nerves and causes swelling - and potentially permanent damage to the eyes. Over the past 3ish years, that pressure has been consistent. When I was admitted a few weeks ago it was because the optician saw the the pressure had increased, there was blurring of the optical discs and my pupils were very slow to react to light. I’ve had blurred vision for several weeks now, and my visual fields test last week, which tests peripheral vision, I felt went badly as I didn’t see any of the things I should see at the bottom of my vision in my left eye. But I haven’t had the results yet
Suzi, I’m ok. Si and Jess are going to the in laws today so I’m getting the house to myself :)
Sorry to hear that Paula. I have Glaucoma which involves most of the same tests..especially field of vision tests. Take good care of yourself and I hope things can be resolved for the most part.(bear)
OO so what are you up to today? Lots of partying? Strippers? Men with loose morals? Vodka watermelon?
(rofl)
Katie came over and we watched Onward together. Her landlord has sold his house so they’ve got to figure out where they can live that doesn’t cost so much than they can’t save up for a deposit on their own home itms. They were going to move in with Dom’s parents but he’s had a huge bust up with his mum over her drinking.
Thats not do great. Are the prices in the whole of the UK as high as I see sometimes on those tv shows? They are rediculos
Yes, and we are in the South East, one of the most expensive areas in the country.
Stella180
04-10-20, 07:10 PM
To give you an idea around my neck of the woods a 1 bedroom apartment goes for around £500-£650 pcm
Jaquaia
04-10-20, 07:15 PM
Yet you can get a 3 bedroom for around £400 here
To give you an idea around my neck of the woods a 1 bedroom apartment goes for around £500-£650 pcm
£850 here....
Lol, the house next door to me is "cheap" and is £1750 a month - 3 bed house.
I’m struggling tonight, really fed up with life :(
Strugglingmum
05-10-20, 08:27 PM
(panda)
Wish I could give you a real one.
Any one thing in particular or everything jumbled together?
Everything. Not helped by having a diet ready meal while Si and Jess were eating steak.... I know that sounds childish but it was the straw itms
Strugglingmum
05-10-20, 09:11 PM
It makes total sense.
Those straws have a habit of sneaking up and jumping on the camel's back and totally disabling us.
So why wait till late to start talking? Narna....
I agree the last thing is always the smallest thing....
Because I spent the day trying to distract without even realising what I was doing. It feels like all the energy I’ve put into trying to get well over the last few weeks has disappeared, and I’m treacle wading
(bear) I know what you are experiencing. Those are the moments that hurt. But life is not fed up with you. Life is so much better with you in it.
I wish I knew the words that would make it all be better. But know that there are so many people that adore you and think the world of you. If people had the power to take anothers persons pain and struggles away there would be a line a mile long outside your house.
Jaquaia
05-10-20, 09:47 PM
(panda)
Just keep in mind that the energy you put into this wasn't wasted at all! If some things keep dragging you down it perhaps needs more energy to keep you up. But from my perspective you're still going strong and steady ;)
How are you today love?
Have you ever stopped to think that actually right now you deserve to have a rocky bit? You've been through so much with all the worry, stress, LPs, time in hospital, now the disagreement with Si about the next LP, the worry about his job, that's on top of the worldwide pandemic, not being able to see K at all for a while, the worry about your Mum etc etc etc Maybe a bit of being kind to you is what is needed right now?
Sweetheart you have been through a lot in the last few weeks and still have more to come, plus with your mums treatment coming up and also Katie needing to find a new home its bound to have an effect, I havent got an answer but please take some time for you, you will get there as your strong and one of the strongest people I know.
OldMike
06-10-20, 09:10 AM
I should have words of wisdom after all with age comes wisdom who ever said that wasn't old so I'll leave you with these (bear) (panda)
Logically, I know you’re all completely right. Emotionally, it’s a bit harder to see
I know love... (bear) Is there anything I can do to help!
Just keep reminding me it’s not as bad as I think
I’m having a mani pedi this afternoon, that’ll help. 3 hours of pampering :)
I hope you can enjoy it to bits. You deserve some pampering. And what you said is true for so many of us. If we look at it logical we can see how it is and that its all good and the right path is taken. But then...... Our emotions come in and take us on a rollercoaster.
But for now pampering!
Strugglingmum
06-10-20, 02:45 PM
Emotions...... got to love them!! (panda)
Enjoy your pampering love, you so deserve it. X
How's the pampering been?
(bear) (bear)(bear)
Lovely, my hands and feet look all pretty. Then Katie came over and watched Bake off with me :)
But, my debit cards been cloned online - cheeky (swear)(swear)(swear)(swear)ers took £200. Good job Si checks the bank statements every day!
Glad he spotted it before too much damage has been done.
I'm glad that you got to spend time with Katie too.
How's your mood love?
I agree, my brother was cloned earlier this year and they cleared out all his money...
I’m ok, I've not got a zoom meeting today that I thought I had - which means I don’t have to rush around. So, later I’ll be studying but first I’m going to virtually look at bathrooms - we’re getting someone round to quote for a new en suite :)
That sounds fun!
How's your mood today?
Ok, I managed to meditate to calm myself after panicking over my eye appt on Saturday. So that’s a win ;)
Strugglingmum
07-10-20, 10:43 AM
Oooo we just about finished our en suite.
Si found out today that he’s lost his job. He’ll have a consultation soon to see if there are any other roles going he might be suitable for, otherwise it’s redundancy
And I’ve got my eye appointment tomorrow morning
Strugglingmum
09-10-20, 11:31 PM
(panda)
Thinking of you. So sorry about Si. X
Stella180
09-10-20, 11:39 PM
Oh no! Not the news you wanted to hear. Fingers crossed for eye appointment.
Sorry to hear that. That must be rough on him.
Good luck later on with the appointment.
Allalone
10-10-20, 07:39 AM
(panda)
Jaquaia
10-10-20, 09:18 AM
So sorry to hear that!
Hope the appointment goes well (panda)
Sorry about Si's job love. How's he taking it?
Hope all goes well with your eye appointment today hunni x
Si’s pretty upbeat. He’s going to push (unless there is another role) to leave immediately.
So, my eyes are still swollen, there’s some disc blurring in the left eye and I did miss quite a lot in the visual fields test at the bottom of my left eye (I thought I did). He said I had missed in past tests but it is a bit worse. I had a scan and he wants to see me again in 2 months to see if there’s been any changes. It might just be that it’s taking a little time for everything to settle down with the new meds.
What does all that mean for your driving?
It's good they are keeping a close eye on you lovely.
I’m not going to drive at least til the next appointment, I don’t feel safe and Si’s around. Close eye? Really? (giggle)
So, sometimes it worries me how well some people know me. This arrived in the post today and I LOVE it! Thank you Stella
https://i.ibb.co/Ss5zFDD/A63-DE0-D7-68-A2-4261-8279-35-CD5-E10393-A.jpg (https://ibb.co/r7FVDKK)
Stella180
10-10-20, 01:05 PM
I only knew cos you posted something on FB ages ago and I ordered it straight away. It’s been sat in my house ever since cos I never got round to posting it. Really pleased you like and it’s given you something to smile about.
Jaquaia
10-10-20, 01:51 PM
It's absolutely beautiful. Stella, you really are awesome and there's no point arguing as I'm not going to listen!!!:P
Wow, that's stunning! Jaq's right, you are awesome.
It's absolutely beautiful. Stella, you really are awesome and there's no point arguing as I'm not going to listen!!!:P
Yep, completely agree!
But seriously, ladies, I know I’m not a crier but there’s no need to try so hard to make it happen (another parcel I got from our Suzi this afternoon). Thank you (Kiss)
https://i.ibb.co/X4PsLBr/EFCBE35-E-0-B74-4-E3-D-BFFF-3055-D74-F7-A68.jpg (https://ibb.co/6ZSPwh7)
Jaquaia
10-10-20, 03:46 PM
You cried??? Surely not!!! ;)
Absolutely gorgeous
You cried? It wasn't meant to make you cry lol....
Stella180
10-10-20, 07:18 PM
Oh Suzi! Fancy making Paula cry by being such caring and thoughtful friend.
So, I spent all yesterday afternoon with an upset stomach, which was rubbish. Even worse, we were supposed to go out for a meal with the kids last night ....... on the plus side, it probably helped the diet ;)
Stella180
11-10-20, 11:12 AM
Welcome to my world. Has it settled down now??
Oh no! Hate that... You feeling brighter today?
Better than I was but still a bit fragile. I’ll live, probably stress
(panda) You've certainly had your fair share of crap to deal with...
Stella180
11-10-20, 12:23 PM
Well you’ve had a lot of pretty heavy stuff going on so it’s no real surprise that something had to give. Snuggle up on the sofa with your long legged pups and watch trash tv. It’s the law when you feel rough.
(panda) You've certainly had your fair share of crap to deal with...
*sniggers*
So, I had some lunch and felt a bit better so, um, pruned back the triffid aka honeysuckle. I’m knackered and sore but I needed the fresh air and exercise
I am cross! I put my repeats request through for my inhaler and amitriptyline on 1 and 4 October respectively. I ran out of my inhaler on Friday and run out of the ami today. Boots process my repeats for me but I couldn’t get hold of them this morning so I rang my GP and they were emailed to Boots on the 7th! Good job I didn’t have to cope with flu or covid without my inhaler, right? On top of that, Boots online kept telling me I had to physically go to the GP to get a linkage key meaning I could send the request direct to the surgery who’ll then pass it to Boots. Except I’ve just been told I can now email requests straight to my GP!
Stella180
12-10-20, 10:27 AM
What a joke! (And not a funny one either)
Oh no! That's awful! I hope you've put in a complaint! Will they get it sorted for you today?
(panda)(panda)
Are you resting today?
What's happening with Si? Does he have a finish date? Is he looking around for something else?
How are your Princesses? Puppers?
Not resting - study. I’m soooo far behind after everything
Princesses are ok, Katie is starting to make appointments to view houses :) puppers are gorgeous and seem happy
Si has chats this week with his boss to see if there’s anything suitable in Centrica - their redundancy bill is looking huge so they’re keen to redeploy ‘expensive’ staff like him. Otherwise, redundancy day will probably be mid November, and he’s thinking he’ll take pay in lieu. He is looking for something but we’ll have a fair amount of time to play with before the money runs out
Hooray for him being "expensive" :) Glad that the pressure will be off for a while. Hope Katie finds her dream home soon x How's Jess?
Studying? Are you pacing?
Jess is absolutely fine, and being nice to me right now.
No, I didn’t pace and am regretting it now, but I have to catch up. I have realised I’m more stressed than I thought - I thought I was relatively calm about everything - but I very nearly bit my dad’s head right off earlier. He was being a bit of an ass but that’s because he has a lot on his mind. Normally, I’d let it wash over me but I struggled today
Want to talk about it? What can you do to help you to destress a bit today?
I don’t think there’s much more to say at the moment that I haven’t already. It’s pretty obvious why I’m stressed - the last few weeks have been difficult and I’m worried about the future.
Anyway, de-stressing today involves touching up paintwork in the utility room where we’ve (the royal we obvs) moved shelves :)
That sounds fun! Are you the one doing the painting?
I am ;)
In other news, I have my appointment for the next lumbar puncture on 26 October. I’ve got to have a covid test 3 days before and self isolate at home (different bedroom, bathroom etc) for 3 days before......
Oh wow, that's going to be hard....
None of this has been simple, tbh lol
Stella180
13-10-20, 03:19 PM
But you can still share a a room with Demi and Jax though. You don’t need anyone else.
I know it's not been easy or simple... You'll get through it though, you're made of fighter material...
The hospital has made a little mistake - my lumbar puncture needs to be booked through radiology not neurology. So 26th is cancelled and I just wait for another letter
Jaquaia
14-10-20, 12:11 PM
Oh! Fingers crossed it comes through quickly!
Stella180
14-10-20, 12:14 PM
What the.... what difference does it make?
Different staff? Making sure the X-ray machine was available?
Sorry for the mix up. Annoying though x
What a bugger! At least they've told you now, and not when you turned up - every cloud and silver linings etc...
I’m fighting a cold - my throat is so sore and my head hurts. The dogs have trodden mud through the house and Demi has ripped up a package that came through the door - fortunately the contents seem ok, though I’ll check later for little holes, as it’s for my Christmas shoebox :@
Strugglingmum
14-10-20, 05:59 PM
Hope you feel better soon.
Demi......oooooops
Stella180
14-10-20, 06:17 PM
Tut tut. Bad Demi.
Worst dog in the world ;)
Stella180
14-10-20, 07:28 PM
Good job she’s cute eh?
Oh no Demi!!! Were the contents OK?
Yeah they’re fine, I’m cross with her (though didn’t shout) which isn’t fair as she doesn’t know she did wrong. I’m just feeling crap and didn’t need to be clearing up pieces of plastic and cardboard
No you didn't... Have you thought about a cage for the letterbox? We had to get one when we had Casey and Lola, now we have a letterbox outside lol
The letterbox is right at the bottom of the door so I don’t think a cage will work, though I don’t know. I’ll have a chat with Si
Oh.....
How are you today gorgeous?
Sore throat, Katie is off work with the same. Might do some cross stitch today, I’ve been studying all week so far
About time you took some time out then love..... Sorry you and Katie both have sore throats... I sympathise.
No you didn't... Have you thought about a cage for the letterbox? We had to get one when we had Casey and Lola, now we have a letterbox outside lol
Looks like we’re getting an outdoor letterbox. Thanks, hun
You're welcome. It's easier for us! Esp as we've put it up so I don't have to bend to get to it at all.
Very excited this morning. For the first time in almost 8 years, I’M GOING TO TRY WEARING TIGHTS!!!
Stella180
17-10-20, 11:21 AM
Wow! That is a big deal. Why today?
Eww, tights! How did you get on?
Today? Because I had a pair of Snag tights delivered ;) . I’m fed up with having cold legs, Suzi, so wanted to see if I could build up enough of a tolerance to wear them when I’m out and about. So far, it’s bearable - the Bath team would be proud lol
I am SOOO proud of you! (Also love Snag chub rub shorts lol) I wear leggings and never skirts so I don't need them.
I am so excited for you!
Stella180
17-10-20, 04:08 PM
I’m glad it’s going well for you.
Jaquaia
17-10-20, 06:10 PM
Snag tights are awesome!!!
I’ve ordered another 5 pairs!
I’m a tad disappointed. Katie came over to watch Strictly, only for Jess to call on her way home from work to tell Katie she had to go home as one of Jess’s colleagues (and friend) has tested positive for Covid..... I suppose we all have to be flexible with our plans, and that’s not going away any time soon
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