Breathing a sigh of relief *SH, SU triggers*

[Paula]

(party) I’m off to see Captain Marvel later (party)

[Suzi]

I'm so jealous! NO spoilers!

[Paula]

It’s fab! That’s all I’m saying ;)

[Paula]

Oh, and Jude Law is pretty (inlove)

[Suzi]

(rofl)(rofl) How are you today?

[Paula]

I’m good. Not in too much pain so far this morning, which is always helpful ;). We’re going to the i laws tomorrow so am spoons preserving today (I’m getting the hang of this pacing, right?) - I’ll probably do some more cross stitch :). I still haven’t caught up with energy from last weekend and the cinema last night, though awesome, wiped me out

[Jaquaia]

Can you teach Suzi how to pace? (giggle)

[OldMike]

Was Captain Marvel marvelous? glad you enjoyed it and you seem to have got the hang of conserving spoons ;)

[Suzi]

I’m good. Not in too much pain so far this morning, which is always helpful ;). We’re going to the i laws tomorrow so am spoons preserving today (I’m getting the hang of this pacing, right?) - I’ll probably do some more cross stitch :). I still haven’t caught up with energy from last weekend and the cinema last night, though awesome, wiped me out
Glad you are pacing. I'm really proud of you!

Can you teach Suzi how to pace? (giggle)
Oi cheeky!

[Jaquaia]

(giggle)

[Paula]

Back from the in laws. We had a good time,Si’s aunt and uncle were there and we haven’t seen them in a couple of years because she’s been seriously, seriously ill with cancer (and had a good chunk of her spine removed and replaced with titanium rods) so was not allowed anywhere with more than a couple of people. It was so lovely to see them. My FIL bought (or rather was forced to buy by MIL - he doesn’t open his wallet lightly lol) a very old bottle of Armagnac at auction recently which cost £400 - so I had to have a glass. My word it was gaw-juss!

[Jaquaia]

Could have got a new bottle for less (giggle)

[Paula]

Heathen ;)

[Jaquaia]

I have no idea what it even is!!!

[Mira]

How lovely to seem them again. That must mean its going way better. Thats always so nice to hear. I bet it was great to have a glass of that :)

[Paula]

How lovely to seem them again. That must mean its going way better.

She’s treated as far as they can but not cured. She had leukaemia as a teenager and she’s been in remission ever since. Then gets to 60 to get a completely different (bone) cancer, everywhere. We have no idea of her future, but then none of us do I suppose. And yet she still mucks out her 3 horses every single day

[Mira]

So sorry, I guess I said the wrong thing.

[Strugglingmum]

I have no idea what it even is!!!

Not my usual, What's on offer at Asda? Standard.
Get the posh folk!(rofl)
Seriously......is it wine?? Brandy? ???

[Paula]

So sorry, I guess I said the wrong thing.

Not at all, it is going better, it’s just not going completely away. She’s really upbeat and positive about it also we’re taking our cue from her :)

Edit: SM it’s brandy ;)

[Jaquaia]

Not my usual, What's on offer at Asda? Standard.
Get the posh folk!(rofl)
Seriously......is it wine?? Brandy? ???

You know about as much as I do! (giggle)

[Suzi]

OOOO NOM! Sounds like a really lovely time! I hope you have an easy day planned for tomorrow.

[Paula]

Lol that’s rich coming from you, Boss! But, yes, I’m being sensible tomorrow ;)

[Suzi]

Hope the resting is commencing...

[Paula]

I basically cross stitched all day (my hand is annoyed but I don’t care!). I’ve been a little tearful - watching Top Gear last night they had a black female greyhound on the show who was the spitting image of my Luna, it’s upset my equilibrium a bit ;(

And yesterday we found out our niece has split up with her husband of not quite 4 years....

Still, tomorrow I’m having my nails done (and I must chase up DWP re my ESA assessment)

[Jaquaia]

(panda)

[Suzi]

(bear)(bear)(bear)

[Paula]

I spent ages on the phone to JobCentre plus this morning as my face to face assessment for ESA was 21 Jan and I hadn’t heard anything. Turns out they’d made a decision on 5 Feb! He told me they should have tried to phone 3 times then send out a letter but, when he got through to the notes, turns out no one had tried to contact me ..... anyway, the decision is I’m still entitled and in the support group. I did ask for a copy of the report, he tried to put me through to the health assessment people but I couldn’t get through. I’m too tired to have another conversation about my health so I’ll ring tomorrow.

[Suzi]

That's terrible that they didn't let you know, but awesome that you're still entitled! Go you!

[magie06]

Thank goodness you are still eligible. Boo! for bad follow up. Typical of red tape though.

[Jaquaia]

That must be a weight of your shoulders (panda)

[Paula]

Oh yes! It’s behind me for a while now :)


Edit: my father just posted this on Facebook

‘They drop them out of a castle window to check the ‘leads’ don’t break!’

I have absolutely no idea ......... (rofl)

[Paula]

OH. MY. GOD! I commented to Si earlier that I’m bored and when he came back from walking the dog he said he’d been thinking and maybe I should try buying and selling the odd antique/collectible as I obviously love that whole world. I was so flabbergasted I actually couldn’t even answer him (giggle)

[Jaquaia]

Is that a first? ;)

[Paula]

He was confused, bless him, he’s never known me silent ;)

[Jaquaia]

(giggle)

[OldMike]

He was confused, bless him, he’s never known me silent ;)

Definitely must be a first (giggle)

*cough* Musicals at the movies quiz *cough*

Strange suddenly I've got the urge to do a quiz ;)

What ever you do Paula try to make it a good one and don't put everything in the house up for sale on Ebay (giggle)

[Flo]

If you love antiques and collectables come and see me. Ian's cave is full of them!......I suppose you could include Ian amongst that lot!

[Suzi]

I think that's a great idea!

[Paula]

If you love antiques and collectables come and see me. Ian's cave is full of them!......I suppose you could include Ian amongst that lot!

How long to get from Hampshire to you?????? (giggle)

[Flo]

How long to get from Hampshire to you?????? (giggle)

Ho Ho!!...his cave is also full of cobwebs and spiders!!...still wanna come?? I collect glass ink wells with silver or brass tops!.....I love fountain pens too and have about 30 so far. Love writing proper letters with real pens and real ink.....what do you collect?

[Paula]

I’m fine with sp*ders ;)

I love glass, perfume bottles, anything sewing related (esp needle cases)..... I have the most gorgeous clear and cranberry glass, Victorian Bon Bon dishes that my parents bought me years ago. They are truly exquisite. Si would tell you I collect platinum jewellery ;)

[OldMike]

I’m fine with sp*ders ;)

I love glass, perfume bottles, anything sewing related (esp needle cases)..... I have the most gorgeous clear and cranberry glass, Victorian Bon Bon dishes that my parents bought me years ago. They are truly exquisite. Si would tell you I collect platinum jewellery ;)

Collecting platinum jewellery, I'd expect nothing less from our very own Princess ;)

[Jaquaia]

To be fair, that's only because you react to other precious metals, so it's more necessity ;)

[Paula]

Thank you Jaq. Could you please find a way of reminding my husband of that? (giggle)

[Flo]

Ooh yes, perfume bottles...love them too! Mum had lovely cranberry glass too. You've ignited a flame Paula!...time to look in the antique shops....s'all your fault!!:P

[Paula]

(giggle)

[Suzi]

I love fountain pens! I love paperweights and lots of things! :)

[OldMike]

Ooh yes, perfume bottles...love them too! Mum had lovely cranberry glass too. You've ignited a flame Paula!...time to look in the antique shops....s'all your fault!!:P

If Ian can keep buying vinyl then Flo you're entitled to have your perfume bottles ;)


I love fountain pens! I love paperweights and lots of things!

That reminded me of George at luncheon club today he'd done a poem written using the calligraphy arts, it was about a globe of the world though expressed as though the globe was the body of a woman and the place where we resided on this womanly globe was firmly between the buttocks. FYI rarely a week goes by without George bringing buttocks in to the conversation, as you can tell Custard Club has the most refined type of chit chat (giggle)

Hope you've had a good evening Paula (panda)

[Paula]

(rofl)

Today, I’m ‘doing’ lunch for my friend. It’s her birthday next week but it’s going to be muted with her family with her sister’s stem celll transplant process starting on Monday, so I thought I’d give her a few hours just for her itms. I say ‘doing’ as we all know I don’t cook, bake etc so Mr Sainsbury is doing the honours ;). There’s even cupcakes with candles

[Suzi]

OO enjoy lunch! Sounds like a lovely plan!

[Flo]

Can I come??...slurp!(hedgehog)

[Paula]

Afternoon! I think my friend had a good time. She said it’s the first time in years she’s had a candle to blow out on cake ;). And she loved her pressies so all good

Currently watching Supervet - and seeing a Pug puppy telling off a Great Dane has to be the highlight of my tv viewing this week :)

[Suzi]

That sounds so fabulous!

[Mira]

Thats great.

The one thing that gave me a chuckle was supervet. Thats dutch for superfat. So I had to read that sentence 2 times haha.

[Paula]

(giggle)

[Suzi]

(rofl)(rofl)(rofl)

[Strugglingmum]

Love Supervet!!
I actually think Noel is rather handsome. I'm not sure if its his accent or his passion for animals which is his charm but he is rather fishy in a dishevled way(blush)

[Paula]

Oh I totally agree. His clinic is just up the road from me ;)

[magie06]

It's probably the Irish accent. The best in the world!! (rofl)

[Strugglingmum]

^^^^^^^ just realised I called him fishy!!! I meant dishy!! Damn autocorrect(giggle)

[Paula]

(giggle)

[Jaquaia]

^^^^^^^ just realised I called him fishy!!! I meant dishy!! Damn autocorrect(giggle)

I'm sorry. I saw that and kept going back to read it as it was making me giggle so I didn't say anything... (giggle)

[Strugglingmum]

:P glad to give you a giggle!! The thought of poor Noel being called fishy! (rofl)

[OldMike]

^^^^^^^ just realised I called him fishy!!! I meant dishy!! Damn autocorrect(giggle)

Made me smile too, perhaps he's a fishy dishy (giggle)

[Jaquaia]

Noel in a suit ;)

Check out @ProfNoelFitz’s Tweet: https://twitter.com/ProfNoelFitz/status/1109101730988544006?s=09

[Paula]

That’s two dishy professors I’m crush8ng on ;)

[Jaquaia]

Brian Cox by any chance???


More Noel in a suit ;)

Check out @OpenUniversity’s Tweet: https://twitter.com/OpenUniversity/status/1109151527355236354?s=09

[Paula]

Oooooh yes (inlove)

[Jaquaia]

I have a bit of a thing for Iain Stewart too

[Flo]

Ewan McGregor!

[Suzi]

How are you Paula?

[Paula]

Hi all! Sorry for the radio silence ;). Si and I went antiqueing to start my stock. I came home with a Bristol blue glass dish, 2 green bubble glass bowls, 2 pill boxes and a trinket box. I had a wonderful time!

[Suzi]

Wow! Are you selling on a website? Facebook? I'd love to see what you've bought!

[Paula]

I’m going to list on eBay and set up a fb page. I told Si not to expect profits lol but he just said he saw it more as a hobby for me. I’ll upload some pics later :)

[Paula]

The blue one may not leave me ;)

https://i.ibb.co/NnJmmV9/C5-B56402-B2-DC-410-E-AF02-5-AEBE25-A488-F.jpg (https://ibb.co/mF2XXD9)
https://i.ibb.co/MkrJpPH/51-F66-C29-0-FE0-4999-8-B49-493449-DE8370.jpg (https://ibb.co/Kxd87Vg)
https://i.ibb.co/PcwdDWJ/F567-F1-EF-BDCA-45-FB-8-D31-CB9780190-C47.jpg (https://ibb.co/2vgTZMR)
https://i.ibb.co/27rnBHG/92-DD19-E2-0-C1-B-48-B8-989-F-FA953728-E97-E.jpg (https://ibb.co/PZym80q)
https://i.ibb.co/Jjrhrjz/DE638-B50-BE92-4-D19-8-DE2-597-B1-CA6-BFCF.jpg (https://ibb.co/VYMKMYv)
https://i.ibb.co/kGHmW0x/AA1835-CC-4-CEA-44-D9-A1-AA-C4-B8-A3352-E43.jpg (https://ibb.co/ZfL2kKV)

[Jaquaia]

The glass is beautiful!!!

[Paula]

I love glass :)

[Suzi]

Those are beautiful - That green bubble glass is so beautiful and probably my favourite from what you've bought!

[Paula]

Me too - I just kept stroking it. It’s so tactile :)

[Paula]

I’ve spent 2 hours trying to come up with a name for my Facebook page. Unsuccefully. I think I’m going with something around Luna’s name (or her kennel club name, Makalulu). Any ideas gladly received ;)

[Suzi]

Nothing to do with sparkles? Like Makalulu

[Paula]

I toyed around sparkles for hours but was worried it would be too specific. Favourite atm is Makalulu’s Treasures (I was uptil 1am trying to think of something I like) ;)

[Suzi]

OO I like that!

[Paula]

Or Makalulu’s Gems?

[Suzi]

To me gems implies gemstones, I prefer treasures... But as my husband is a retired pirate (insider joke) I'm always more drawn to treasure chests!

[Mira]

Wrong thing

[Flo]

Morning Paula! who the hell is Makalulu???

[Paula]

It’s the kennel club name of my Luna

[OldMike]

To me gems implies gemstones, I prefer treasures... But as my husband is a retired pirate (insider joke) I'm always more drawn to treasure chests!

On "Speak like a pirate day" last year I changed my Facebook setting to "Pirate Mode" and it has remained like that ever since so on FB you're referred to as Capt'n Suzi so Marc must be your First Mate (giggle)

@Paula: Makalulu and you changed her name to Luna, I'm just wondering what Polo's kennel name is, probably "Prince Diamond the Jewel of the Orient" ;)

Edit: For your FB page I came up with "Luna's knick knacks"

[Paula]

Lol Polo’s kc name is Iverpolo

[Suzi]

Have you decided on a name yet?

[OldMike]

Have you decided on a name yet?

Paula has already decided it's "Makalulu’s Treasures", how do I know, well I've been invited to her FB page ;)

[Jaquaia]

I'm in love with some of her pieces! The scent bottle is so beautiful!! (inlove)

[Mira]

Its a shame I am not on fb, I love to browse.

[Paula]

Have you decided on a name yet?

I went with Makalulu’s Treasures :)


Paula has already decided it's "Makalulu’s Treasures", how do I know, well I've been invited to her FB page ;)

You were the first to reply, Mike! (Other than Si)


I'm in love with some of her pieces! The scent bottle is so beautiful!! (inlove)

That scent bottle will be very hard to part with but it’s just stuck in a drawer.....


Its a shame I am not on fb, I love to browse.

I was going to go on ebay but it’s so expensive to sell


I’ve spent much of the day taking about 10 times too long to get everything set up to post items to Makalulu’s Treasures. Not because it took so long but because (and I know it’s stupid) I was afraid no one would like my Treasures .....

[Jaquaia]

I love everything you've posted so far!!!! You have wonderful taste but then we already knew that ;)

[Mira]

Are you also into tea cups and things like that? I am always looking into those kind of things. I was in a antiqueshop once in the UK and I wanted to buy everything.

[Paula]

I appreciate the beauty in tea cups and my hubby and I were admiring some especially gorgeous ones at the weekend but I have absolutely no idea what’s good and what’s not in that area.


On a completely different note, my ESA medical report came through today. It says that I’m unlikely to improve within 2 years - does that mean I won’t have to be reassessed til 2 years time?

[Jaquaia]

I would assume so...

[Suzi]

Ahhh, no it doesn't mean that is guaranteed for 2 years. They will start sending out the paperwork up to 1 year early and any decision made stands and wipes out a previous one... Marc got caught out with that one...

I love your pieces!

[Paula]

So, yesterday was an exciting day in my new venture. Makalulu’s Treasures sold its first items and my Facebook page has managed to reach almost 200 in less than 48 hours of existence!

Katie’s off to Amsterdam tonight with her boyfriend so cue me trying very hard not to fret for the next 4 days......

[Suzi]

I'm not surprised that Makalulu's Treasures is doing so well so fast, you have impeccable taste!

I am sure that Katie and her bf will be OK and have a great time.
I hope today is full of rest, pacing and loveliness!

[Paula]

Yes, yes and, well, yes ;)

[Suzi]

Awesome! :)

[OldMike]

I'm sure Katie will have a great time.

Woo Hoo Makalulu's Treasures has made its first sale (party)

[Flo]

I'm sure Katie will have a great time! Stop fretting mummy!! She's with her bloke..he'll look after her. You just relax and wait and see what prezzy they're going to get you while they're there:8)

[Mira]

Amsterdam is a safe place. I have been there a few times and its an ok place.

How awesome that you made a sale already. So cool. Congratulations.

[Paula]

I'm sure Katie will have a great time! Stop fretting mummy!! She's with her bloke..he'll look after her. You just relax and wait and see what prezzy they're going to get you while they're there:8)

Are you telling me you don’t fret???

[EJ]

Just looked as Makalulu’s treasures. It is awesome x

[Paula]

Thanks EJ :)

[Paula]

I am so tired I can barely keep my eyes open. Polo kept me up til 1am.....

[Jaquaia]

How come? Can you rest lovely? Maybe have a nap?

[Suzi]

Oh no! Is Polo OK?
Hope you get some rest today....

[Paula]

Polo’s fine, he just wanted to play and wouldn’t settle. As Katie and her boyfriend had to get up at 4am to drive to Stansted, I couldn’t leave him to bark and whine.

I was trying to do some cross stitch but I just kept falling asleep with a needle in my hand ;)

[Suzi]

AS long as it stayed in your hand and you didn't drop it! :)

Hope you've rested lovely.

[Paula]

I was in bed before 10 and slept til 7. I’m still tired but I’ve no plans today - I’ll just play it by ear

[Suzi]

Good!

[Mira]

(panda)

[Angie]

(bear)

[Suzi]

How are you doing lovely lady?

[Paula]

Still weary but not as bad as yesterday. I’ve tasked Si with bringing some dark chocolate home for me.

So, update on my dental work. One of my teeth came out. At first I thought it was part of the temporary bridge but now I’ve looked closer, I can see what I think is the root of a real tooth still in my gum. I think it was the tooth he had to drill into ..... So I’m gummy and sore and could cry

[Mira]

(panda)(panda)

[Suzi]

Awww (panda) love..

[OldMike]

(bear) (panda)

[Jaquaia]

How are you feeling today?

[Paula]

Fed up.

[Jaquaia]

Same reason as yesterday? (panda)

[Paula]

Yeah, my gums sore and keeps bleeding, my jaw aches and I’ve got a gap in my teeth. if I’m right and the root is still embedded in my gum, it’s not going to be fun dealing with it.

I know, I’m having a pity party - it’ll get sorted

[Jaquaia]

You're allowed to be fed up about it. (panda)

[Suzi]

I understand. My teeth are terrible. It all went to shi( when I was taking high dose meds..
Huge hugs (bear)(bear)(bear)

[Paula]

I damaged half of my lower teeth biting on a fork when I was 16. I know, only me.....

[Suzi]

(bear) You narna!

[Paula]

So, tapentadol is out and morphine is in...... he also told us the spinal cord stimulation is now definitely out, even if I changed my mind about it, because of my IIH. He’s going to refer me to the Bath Centre for pain services to have a Residential assessment (I believe it’s usually a months visit).

Dentists is at 3pm, my dentist doesn’t work Mondays but he’s coming in specially, bless him ;)

[Jaquaia]

You're so rock and roll today! (giggle)

A months visit? As in staying there a month???

[Suzi]

How do you feel about the residential? The meds change?

Hope the dentist is OK too love...

[Mira]

I have had a few real nice times at the dentist. I hope yours will be ok.

[Paula]

I have had a few real nice times at the dentist. I hope yours will be ok.

Thank you


How do you feel about the residential? The meds change?

Hope the dentist is OK too love...

The residential will be 2 weeks but I’ll probably have a couple of outpatients appointments first to see if I’m suitable. How do I feel about that? Nervous but that’s the last thing I have to try so I’ll dowhat I need to.

The morphine? Ok surprisingly. It is what it is


You're so rock and roll today! (giggle)

A months visit? As in staying there a month???

Apparently it’s only 2 weeks but I’ll find out more I suppose. And, yes, staying there. That’s not going to be easy .....


Ok, the dentist. Thankfully the tooth I lost was part of the temporary bridge and the permanent bridge was ready so was fitted. I wasn’t great and needed 10mg diazepam but was still a nervous wreck. But that’s not the end of it. The reason, they found out, the first bridge failed is because the tooth next to it, which it was anchored to with a post, has cracked and was twisting. They sorted the bridge out so it’s not attached to that tooth but I’ll need to go back in a few months to try to work out what to do. Eventually, the tooth will also need to come out ......

Off for a blood test this morning

[Suzi]

Blimey that's a couple of tough days.. I hope you're resting when you get back from the blood test?

[Mira]

Yes indeed. Have a rest. Anything else planned just for you to have some fun?

[Paula]

I lay down for a nap at 11.30 and woke up 4 hours later. I’m still drowsy but it’s to be expected with a change in opioids

[Suzi]

How's the changeover going?

[Paula]

I’m very, very drowsy but to be expected. Otherwise, no withdrawal - it was a straight swap so easy to do from that perspective. I had a blood test this morning, mind, and my veins were very shy, which probably had something to do with new meds

[Mira]

How long will you feel this way? Or is there no telling when that might be?

[Paula]

Not long I hope. It’ll pass :)

[Suzi]

It will... You're awesome you know...

[Mira]

I hope that too. I am thumbing for you.

http://rs262.pbsrc.com/albums/ii108/ons-kind/Veel%20geluk/duimen.gif~c200

This is the Dutch way of wishing someone good luck and fortune.

[Paula]

All of a sudden the worst of the drowsiness has gone, hope it lasts :)

[Suzi]

Hooray for no drowsiness! How's the pain?

[Paula]

Drowsiness is back lol. But I’ll adjust. The pain is definitely less so it’s worth the period of adjustment

[Suzi]

Glad the pain is less love. That's the important thing hunni...

[Paula]

Absolutely

[OldMike]

*pokes Paula with a very, very long metaphorical pointy stick and says "Fancy doing the latest quiz"*

Who said that, not me (angel) (giggle)

You may be a bit more sleepy but if it eases your pain then that can only be a good thing (bear) (panda)

[Mira]

The quiz anwsers are sure to be more funny this way :)
I do hope you will soon feel better. This sucks.

[Flo]

How are you feeling today Princess Sparkles?....maybe when you get used to the new meds the drowsiness will disappear.(bear)

[Paula]

I feel awful. I went to bed at 8.30 last night and only woke up at 8am because my alarm went off. I’ve woken up with a thumping headache and nausea. I know it’ll pass as I get used to the morphine so I’m trying not to stress too much

[Mira]

I hope it will pass soon. Like you say it is something that will pass. But still its no good to have to go through it (panda)

[Suzi]

Can you rest? You know as well as I do that right now you are being hit double whammy with the stopping of the tapentadol and the introduction of morphine... All you can do right now is just ride with it and be kind to you... Are you eating and drinking ok?

[Jaquaia]

Hope it eases soon lovely. (panda)

[Paula]

I slept all afternoon, was woken up for dinner and was wheezing badly. I’m struggling to stay awake but my inhaler has helped ish. Si is insisting I don’t take morphine tomorrow morning and ring my consultant as he’s really worried.

[Jaquaia]

(panda) hope they can come up with a solution

[Suzi]

Is it oramorph you are on? If Si is worried then you should listen to him. He knows you and would do anything for you...

[Paula]

No, it’s zomorph - the slow release version (usually used for cancer patients apparently). Si is really worried, bless him

[Paula]

We came to a compromise the pharmacist suggested before I started taking them yesterday - I’m taking a half dose (which
is actually the dose suggested on the PIL - then call the consultant. I’m less drowsy but more twitchy so will see how I go

[Suzi]

You will call the consultant today though?

[Paula]

Halving the dose has helped the doziness although I am twitching. But we’ve decided not to call the consultant (I can text over the weekend if I need to). I’ll be ok

It has helped with the pain :)

[Jaquaia]

Glad it's helped and hopefully the twitching is just a side effect that will pass (panda)

[Suzi]

So glad that the pain is lower and the drowsiness is too... Hopefully the twitching will ease too.... Although I have to ask as I have a sick sense of humour - is it amusing for those around you watching you twitch?

[OldMike]

.... Although I have to ask as I have a sick sense of humour - is it amusing for those around you watching you twitch?

Bad Suzi (rofl)

Paula hopefully it is a short lived side effect (panda)

[Paula]

So glad that the pain is lower and the drowsiness is too... Hopefully the twitching will ease too.... Although I have to ask as I have a sick sense of humour - is it amusing for those around you watching you twitch?

Not when hot coffee is in my hand ;)

[Suzi]

So not funny then? Cup with a lid? (no joking apart, they are my favourite cups!)

[Paula]

I’m a bit weird, I can’t drink from plastic cups.- only glass or ceramics, the texture puts me off.

I’m twitching still, and am aching so I have no idea what to do. But we’re hoping to get through the weekend then sorting things out (we’re booked to have our belated mother’s day dinner tomorrow)

Mum and dad are coming over tonight for dinner

[Jaquaia]

Hope it eases. Have fun tonight! (panda)

[Suzi]

Can you contact your consultant? When you were on the higher dose were you twitching?

[OldMike]

I’m a bit weird, I can’t drink from plastic cups.- only glass or ceramics, the texture puts me off.

I’m twitching still, and am aching so I have no idea what to do. But we’re hoping to get through the weekend then sorting things out (we’re booked to have our belated mother’s day dinner tomorrow)

Mum and dad are coming over tonight for dinner

As a princess surely you should drink from gold or platinum cups ;) must admit I'm not one for plastic or paper cups give me glass or ceramic anytime.

[Suzi]

Plastic cups don't tend to smash when I drop them - which happens a lot..... I'll bring my own when I come down to see you! :)

[Paula]

Can you contact your consultant? When you were on the higher dose were you twitching?

No I wasn’t, which is weird. Sorry I’ve been awol but exhaustion has taken over big time. But, it’s eased a bit. Still twitching but less so. I’ll call my GP tomorrow, I know I’ll get to them within half an hour. I’m thinking it was too much too soon - Si’s not so sure, I think it’s been worse for him - katie said Friday I was like I was when I had my massive kidney infection and hallucinating a few years ago

Anyway, I’m off to my Mother’s Day lunch in a bit. I may be sleeping afterwards ;)

[OldMike]

No I wasn’t, which is weird. Sorry I’ve been awol but exhaustion has taken over big time. But, it’s eased a bit. Still twitching but less so. I’ll call my GP tomorrow, I know I’ll get to them within half an hour. I’m thinking it was too much too soon - Si’s not so sure, I think it’s been worse for him - katie said Friday I was like I was when I had my massive kidney infection and hallucinating a few years ago

Anyway, I’m off to my Mother’s Day lunch in a bit. I may be sleeping afterwards ;)

As long as you don't fall asleep in the middle of lunch ;) have a good long sleep afterwards, the change in meds seems to have knocked you sideways, twitching is less so looks like you're getting over the side effects. (panda)

[Suzi]

Have a lovely mothers day hunnipie. Rest as much as you can too please.

[Paula]

I came home and slept for an hour and am planning on doing next to nothing for the of the day ;)

[Jaquaia]

Good! Hope you had a lovely day (panda)

[Paula]

It was, thanks

[Suzi]

I'm really pleased for you!

[Paula]

I spoke to my GP this morning. He agreed we’d done the right thing halving my dose and basically keep going on that dose to let my body settle and get the tapentadol out of my system. It may be that the half dose will be what’s right long term for me but, for now, to take it bit by bit. I’m still drowsy but not as bad as I was and still twitching but not so much.

[Jaquaia]

Glad it's easing lovely

[magie06]

I'm so glad that your mind has been put to rest. I've been thinking of you a lot over the weekend and wondering how you are doing.
Just in case no one has told you lately, you are amazing and you are such an inspiration to me.

[Suzi]

Glad it's easing even a little love. You're a true warrior.

[Mira]

I have to agree with everyone here. It sounded like it was rough. So I am so glad its going in the right direction now. And you are a strong woman for dealing with it in the way that you do. The Paula way! Its awesome.

[OldMike]

Looks like things are heading in the right direction Paula (panda)

[Paula]

It has been rough, I’ll admit, and it’s not over yet. My neck and shoulders are sooo sore right now, which isn’t helping. Apparently tapentadol withdrawal includes joint pain ....... still, I’ll get there, I’ve just got to keep listening to my body ;)

[Jaquaia]

Can you teach Suzi how to while you're at it? ;)(giggle)

[Paula]

I’m still very much a learner so in no fit state to teach anyone ;)

[Suzi]

Can you teach Suzi how to while you're at it? ;)(giggle)
Cheeky bugger!

Hope that it's easing even a tiny bit each day. I hope the plans for the next few days are to rest....

[Jaquaia]

(Kiss)

[Paula]

Hope that it's easing even a tiny bit each day. I hope the plans for the next few days are to rest....

It really is a tiny bit, but I’ll take that. I’ll rest, mainly because apparently I really scared my family. I’ve also realised that Si stayed at home all week last week to look after me - and actually took time off work. He’s too busy to keep doing that so I have to get myself better

[Suzi]

I think it's great that he stayed home to look after you. Sometimes you just have to go with the flow....

[Mira]

I think its great too. And I doubt that he would be able to focus on his work in a good enough way if you are at home going through this.

I think its where he needed to be.

[Suzi]

Yo Sparkles! How you doin'?

[Paula]

Not great. I ache and feel sick. However, the neck pain is staring to ease :). I’ve fed Polo and given him his meds, so that’s a bonus. The more I do, the less Jess has to complain about doing lol.

Mum’s coming up for a hospital appointment on Thursday and I’ve today made the exec decision that Jess can pick her up from the train station and bring her here for lunch before the appointment - Mum’s not we’ll enough to go out for lunch and neither am I

[Suzi]

Hope Mum's OK?
I'm seriously glad that you are putting that in place. Right now you need to look after you...

[Jaquaia]

Hope it eases soon (panda)

[Mira]

Sounds like a good exec decision. Thinking about all people involved. Thats good (panda) I do hope you will feel better soon.

[Paula]

Mum’s had this chest infection for 6 weeks - after 2 courses of antibiotics they’ve decided it’s viral and rest is all she can do.

She’s got a follow up re her foot, but is fairly sure he’ll recommend surgery as the steroids have not done the job

[Suzi]

Oh no! Poor Mum! Give her a hug from me.... I feel like I know her a bit! :)

[Paula]

I will :)

I’m devestated. Katie and I had booked to go for an experience at Bombay Sapphire on Friday and I’ve had to tell her I’m not well enough to go. This is something I was going to do with her for her 18th and I finally gave her some vouchers on her 21st. So we were really looking forward to doing this together. They don’t have a refund or rearrange policy but will ‘consider it if a written request is emailed over’. I told her to take someone else but she wanted to do it with me.

Im at that horrible stage where I can’t cope with doing anything but am bored with not doing anything. So I’ve been trying to customise my fb page a bit - hopefully I haven’t broken anything :/

[Suzi]

Oh love, I'm sorry about the visit. I wish I had words to make it easier, but I don't.... (panda)(bear)

[Jaquaia]

(panda)

[Paula]

I’m feeling so tearful tonight. I can take my meds in half hour then I’m going to bed and hope I can get comfort in sleep

[Suzi]

Must be something in the air, I'm all teary too... Hope you get some sleep love. (panda)

[Jaquaia]

(panda) for both of you

[Mira]

Oh no, (panda) big hugs to all. And I hope for a good nights sleep and sweet dreams.

[Jaquaia]

How are you feeling today lovely? (panda)

[OldMike]

(bear) (panda)

[Suzi]

Hope today is at least a little brighter for you gorgeous lady x

[Mira]

If people could take your pain and troubles away just by how much they care about you. You would not have one single thing going on with you.

Going through what you experience and still care about others and be so supportive. Its heartwarming (panda)

[Paula]

If people could take your pain and troubles away just by how much they care about you. You would not have one single thing going on with you.

Going through what you experience and still care about others and be so supportive. Its heartwarming (panda)

Thank you, sweetie, that’s such a lovely thing to say.

I’m up and down like a yo-yo at the moment. Si thinks we should be thinking of giving up on the morphine but I still don’t know how much of the symptoms is tapentadol withdrawal

[Suzi]

I've heard tapentadol withdrawal is horrific. You stopped cold turkey too so it's going to be rough. The decision has to be yours.

[Paula]

My symptoms certainly get worse as I get more tired. I am slowly getting better - katie said earlier that I was stringing sentences together for the first time, though that got worse as I got tired. But, although I’m generally aching, I think the CRPS pain is less - which I’m hoping means the morphine is doing it’s job. But, this all sucks .....

[Allalone]

(panda)

[Jaquaia]

Fingers crossed that it's down to withdrawal and will wear off soon.(panda)

[Strugglingmum]

(panda)

[Suzi]

Of course it sucks, it's f*cking tough what you're doing. You are a WARRIOR and you can do this.

[Strugglingmum]

(panda)
Just leaving this here. Xx

[OldMike]

(bear) (panda)

[Suzi]

You haven't posted here today. Does that mean you're in a really bad way?

[Paula]

Mum’s been here for lunch and it wore me out so I slept a lot. She saw her consultant and she’s got to have surgery on her foot (Morton’s Neuroma).

Otherwise, I’ve been up and down all day. But I got to see my mum :)

[Jaquaia]

(panda)

[Suzi]

Glad that you got to see your Mum lovely, sorry that she needs surgery.
I'm also really glad that you rested...

[Paula]

Not going too well today. The twitching is horrible and I’ve got pain around the top of my stomach

[Jaquaia]

Is it worth contacting your consultant?

[Strugglingmum]

:s(panda)

[Suzi]

Have you called your care team? If not, why not? What does Si say?

[OldMike]

Do you need to see your GP especially with the tummy pains? (bear) (panda)

[Mira]

I hope you are ok (panda)

[Allalone]

Sending gentle hugs Paula.(bear)
(panda)

[Suzi]

You OK?

[Paula]

Getting there - brains less confused, twitching and pain is less and I think I’m less slurred and ...... I think I have more movement in my hand!

[Jaquaia]

So pleased things have improved!

[Suzi]

Hooray!!!!!

[OldMike]

(bear) (panda)

[Strugglingmum]

That's so good to hear. Praying things continue to improve for you. Xx

[Paula]

This hasn’t been good for my weight - I’ve put 4lbs on since this started ....

[Strugglingmum]

First things first. Xx
Weight can be tackled when you are in a better place. Xx

[Jaquaia]

You'll sort it. Look at how well you did dropping the weight to help your IIH considering you were limited in terms of exercise. I have every faith that you will soon shift it (panda)

[Suzi]

As the others have said, you'll shift it again.

[Paula]

My brain is shifting away from me so I’ll say goodnight ;)

[Jaquaia]

Night lovely (panda)

[Suzi]

Night gorgeous x

[Strugglingmum]

Night. X

[Suzi]

How are you today lovely?

[Paula]

So, I thought I was doing ok and looking forward to having my hair done - which has completely screwed my poor brain up and I’m feeling lousy again.