View Full Version : Venturing out of the dark *TRIGGERS*
Jaquaia
08-09-17, 10:49 PM
My hands and wrists are flaring tonight, my left wrist is particularly bad. It's irritating me more then usual as I know I should be starting medication to hopefully improve it and because of a lack of communication between my doctors, I'm not. I feel let down.
S deleted
08-09-17, 11:04 PM
You have been let down but unfortunately this is all we can expect from the NHS lately. It's such a shambles.
You have been let down.... I'm sorry you're flaring love. I sympathise - most of us at IMPACT were flaring too...
Jaquaia
08-09-17, 11:17 PM
Well the two weeks of naproxen before my last appointment barely dropped my CRP levels. I saw a copy of the letter the consultant sent my gp in July, so I do need to be on this. I'd psyched myself up to start it today too
It sucks. Pure and simple. I truly hope they sort it out before your next gp appt ....
Jaquaia
09-09-17, 10:46 AM
I see the rheumatologist again in 3 weeks so hopefully I'll be on it before then!
Date tonight and a little nervous!!!!
S deleted
09-09-17, 10:50 AM
No reason to be. He sounds like a decent lad and I'm sure you'll have a lovely time. DFYT.
Jaquaia
09-09-17, 10:57 AM
He does sound lovely and I find it so easy to talk to him on the phone. You know what I'm like though.
S deleted
09-09-17, 11:26 AM
Nerves is expected but I'm sure you will have a lovely time.
Do you know where you are going yet? Worked out what you're going to wear yet?
I'd have been surprised if you weren't nervous, it's pretty standard for a first date :). You are lovely and he's a lucky man!!
Jaquaia
09-09-17, 01:03 PM
I've never been on a proper date before so this it all completely new to me! Sad that really!
S deleted
09-09-17, 01:07 PM
Erm, yes you have. It was cut short though as I remember
Jaquaia
09-09-17, 01:13 PM
That wasn't exactly a proper date (blush)
S deleted
09-09-17, 01:30 PM
Err, it was supposed to be. I remember you being excited about it. In hindsight I'm wondering if excited is the right word to use.
OldMike
09-09-17, 02:01 PM
I'd have been surprised if you weren't nervous, it's pretty standard for a first date :). You are lovely and he's a lucky man!!
I agree with Paula you are beautiful and he's a lucky guy.
So how's it going? How'd it go?
Jaquaia
09-09-17, 10:30 PM
It didn't
Why? What happened? What did I miss?
Jaquaia
09-09-17, 11:00 PM
His car was damaged, bodywork damage and a flat tyre and he's spent half of the day sorting that out.
Oh hunni! Have you rearranged?
Jaquaia
10-09-17, 10:38 AM
Not yet. I'll probably speak to him later.
Awww hunni thats a shame xx
Hope you do work something out with him... Have you met him before?
OldMike
10-09-17, 11:06 AM
Not yet. I'll probably speak to him later.
Hope you manage to rearrange another date with him.
magie06
10-09-17, 11:09 AM
That's terrible. I hope you can rearrange soon.
Jaquaia
10-09-17, 11:48 AM
Hope you do work something out with him... Have you met him before?
I haven't but we've talked a lot on the phone, and some of you will know that's huge for me! The conversation just flows and feels easy.
S deleted
10-09-17, 12:18 PM
I bet it's nice to talk to a sober person for a change lol
Jaquaia
10-09-17, 12:34 PM
Haha! It's always fun mate ��
Jaquaia
10-09-17, 06:52 PM
Well.......
He's just drove all the way from Grimsby to see me for an hour, to then drive all the way back. (blush) So a man who likes me who I've only spoken to on the phone will drive for almost an hour, and an hour back, just to come and see me, yet the man who said he loved me couldn't manage a 20 minute drive. That speaks volumes to me.
YES!!!! That is what a decent man will do (happy)
Jaquaia
10-09-17, 07:04 PM
I can actually imagine you cheering Paula (giggle)
Jaquaia
10-09-17, 07:17 PM
I'm seeing him again next Saturday (blush)
Oooooooo maybe I get to buy a hat (rofl)
S deleted
10-09-17, 07:31 PM
How did it go?
Jaquaia
10-09-17, 07:48 PM
It went really well, he is so lovely!
S deleted
10-09-17, 08:02 PM
He might've just redeemed himself. What's the plan for next week?
Jaquaia
10-09-17, 08:19 PM
Fanciable? ;)
Not my usual type but he's pretty cute. ;)
He might've just redeemed himself. What's the plan for next week?
Movie and food!
Movie and food sounds good hunni xx
S deleted
10-09-17, 08:25 PM
I'm glad he's not your usual type aka a (swear)(swear)(swear)(swear)(swear)(swear)! He sounds like a decent enough guy. Fingers crossed.
Jaquaia
10-09-17, 08:29 PM
Tell me how you really feel! (giggle)(rofl)
S deleted
10-09-17, 08:50 PM
I think you know me well enough by now. You do have a habit of falling for the wrong kinda guys.
Jaquaia
10-09-17, 08:56 PM
That is very true! But I like knowing I can count on you to tell me the truth.
To be fair your usual type don't exactly treat you like a princess...... I'm so glad you had a good time! :)
Jaquaia
10-09-17, 09:41 PM
He's so easy to talk to and so gentle. I think he would treat me like a proncess.
Morning, lovely, how are you doing?
Jaquaia
11-09-17, 12:24 PM
I'm ok, still flaring but at least it's not bad. Going to try and take it easy today.
magie06
11-09-17, 01:14 PM
Good. You need to take it easy every now and again.
(bear) for the flare hunni. Hope you really are taking it easy.
Jaquaia
11-09-17, 02:45 PM
I actually am as a headache isn't helping things.
Jaquaia
11-09-17, 06:10 PM
No it hasn't, and my hands feel even stiffer. Thinking about it, I haven't drank a lot today so that won't be helping matters.
Just found out that my dads getting made redundant in January too.
Sorry about your Dad. I know how daunting that is...
Drink Jaq..
S deleted
11-09-17, 06:45 PM
That is crappy news about your old man. Hope they give him a decent payout at least.
Jaquaia
11-09-17, 07:01 PM
I won't hold my breath with that company.
Oh Jaq, I'm so sorry. It's all being chucked at you at the moment :(
Jaquaia
11-09-17, 07:46 PM
I feel for my dad. He's going to hate being at home all day.
Doesn't mean he won't get a different one?
Jaquaia
11-09-17, 09:06 PM
He's 64 after Christmas. He knows he's goig to struggle
Sorry to hear about your dad hunni xx Have you had something to drink ?
Jaquaia
11-09-17, 10:06 PM
To be honest, I suck today. I've had one glass of coke and I'm clenching my jaw too which isn't helping. This flare up is getting steadily worse too.
(bear), can you get another drink even if you sip it slowly xx
Jaquaia
11-09-17, 10:19 PM
I'm going to go and try
How are you feeling love?
Jaquaia
12-09-17, 11:18 AM
I don't think I'm doing as well as I thought. The thoughts of hurting myself are gone, but my drinking is sliding, I've not showered in a couple of days and my eating isn't great. Feeling numb a lot.
S deleted
12-09-17, 11:27 AM
So you're having a few tough days, that doesn't mean it's all bad. If you know you're slipping and can see the signs you can do something about it. Sometimes the little things need a big effort but you can get through it cos you know by looking after yourself better you will feel better.
Maybe you need to give yourself a break. You are doing really well without the horrible thoughts. Just work on the other things bit by bit lovely.
Jaquaia
12-09-17, 09:55 PM
I've forced myself to get a shower so that's one thing off the list.
S deleted
12-09-17, 10:15 PM
Feel better for it?
Jaquaia
12-09-17, 11:14 PM
A bit better. Still feel exhausted and like I've climbed Everest though and counselling tomorrow.
S deleted
13-09-17, 12:27 AM
Hope it's a good session for you.
Good luck with the counselling today love. Let's hope that this blip will pass soon.(bear)
Hope it's a good session at counselling lovely and that the flare is ending for you x
Jaquaia
13-09-17, 12:06 PM
Still flaring but I can live with it. I had such a bad nights sleep that I didn't wake up until 5 minutes before I was due at my appointment. It's rearranged for next Wednesday now. And then it's that time of the month too so stomach ache and feel grumpy on top of can't be bothered! (think)
S deleted
13-09-17, 01:02 PM
3 in row!!! My you are getting regular lol
I send buckets of sympathy lovely....
Jaquaia
13-09-17, 03:25 PM
3 in row!!! My you are getting regular lol
I know! I'm not used to it!!!
Jaquaia
13-09-17, 05:13 PM
Oh ffs!!! Can I have be given a break please? My mum has had her MR refused. Guess who sorting the appeal will fall to ;(
Sweetheart, get support from fightback or Citizen's Advice. You shouldn't have to deal with this on your own (bear)
Absolutely get help.... Have you been through the appeal process before?
Jaquaia
13-09-17, 10:49 PM
I haven't. Not looking forward to it.
One thing to remember is that the tribunal is made up of independent experts who are not biased towards DWP.
Jaquaia
14-09-17, 11:06 AM
Well there will be no giving anyone the finger today! Or even a thumbs up, as I'm still flaring. Just spent an hour at the OTs with my mum and she's got various hand splints to try. Got some housework to do today and get the rents packed up to go tomorrow (FREEDOM!!! (giggle)) and will research the appeal process over the weekend.
I've been through it twice (one for esa and one for pip) for Marc, if I can help at all - shout.
Sorry you're still flaring - any sign of being able to start methotrexate yet?
Jaquaia
14-09-17, 01:14 PM
I'm trying to get through to the doctors to check.
Good luck - took me over an hour to sort fracture clinic for Hazel....
Jaquaia
14-09-17, 01:31 PM
The letter has finally arrived with the doctors surgery except rheumatology have forgotten to mention if my chest xray was clear :(: The secretary is printing it out and putting it in the doctors tray for him to look at. Fingers crossed I get sorted out now as I'm back in clinic in 3 weeks!
S deleted
14-09-17, 03:34 PM
Don't cross your finger cos that'll hurt
Hope that your sorted for your meds soon hunni
Jaquaia
14-09-17, 10:15 PM
Got to ring back tomorrow to see if they've done me a prescription.
Jaquaia
15-09-17, 10:50 AM
Still flaring but home alone for the weekend so woohoo! Don't get me wrong, I love my parents to bits but it's nice to have some me time
Jaquaia
15-09-17, 12:15 PM
Got a friend coming round for a brew today. Not sure about the rest of the weekend yet
S deleted
15-09-17, 12:50 PM
Orgy? Lol
Jaquaia
15-09-17, 02:58 PM
Was still telling my mum that last night! She was not amused (rofl)(rofl)(rofl)
Hope you're having a lovely weekend alone! :)
Jaquaia
15-09-17, 10:09 PM
Well I've had a lovely afternoon with my friend J, I think it's done him some good too as he's been having a tough time lately. Just vegging on the couch now watching Pitch Perfect. Wrist is still flaring like a bitch though.
Awesome movie choice! So glad you're having a good time hunni. Bugger about the wrist- try biofreeze it sort of helps - but only the spray.
I love pitch perfect but still can't watch 'that' secene ;)
Jaquaia
15-09-17, 10:50 PM
'That' scene is gross! :x
I've got anti-inflammatories in and will try and get the methotrexate sorted on Monday.
S deleted
15-09-17, 11:08 PM
Haha you bunch of lightweights. Pitch perfect is an amazing movie. I absolutely love it. The second movie was only saved by Rebel Wilson who it so funny. You've gotta love fat Amy
Jaquaia
15-09-17, 11:17 PM
I still watch it! The only scene I can't actually watch is the opening scene of Godzilla with Matthew Broderick and the worns
S deleted
15-09-17, 11:21 PM
The start of Ace Ventura I can't watch cos of my fear of heights. Sad I know but it freaks me out
I aspire to be as confident as Fat Amy ;)
How you doing gorgeous Jaq?
Jaquaia
16-09-17, 02:23 PM
I'm ok. Having a quiet day watching films.
Jaquaia
16-09-17, 05:24 PM
I'm not sure yet Paula, a friend has messaged me asking if I fancy a coffee. Think he needs a shoulder but he's not revealing much
Hope you're having a lovely time and are looking after you.
Jaquaia
16-09-17, 09:33 PM
He's had me in stitches. My face is aching I've laughed so much
OldMike
17-09-17, 10:56 AM
That's great Jaq :)
How are you doing lovely?
Jaquaia
17-09-17, 08:04 PM
Having a quiet night tonight. Have a lot of stuff going round my head that I'm trying to figure out.
Not sure that sounds good lovely...
Jaquaia
17-09-17, 08:56 PM
Just questioning some of my behaviour lately.
Just questioning some of my behaviour lately.
Which bits? Wanna talk about it?
Jaquaia
18-09-17, 01:51 PM
I'm not sure where to begin really
Wherever it starts to flow from....
Jaquaia
18-09-17, 09:50 PM
So my ex from 10 years ago has got in touch and dickhead texted me today to tell me he still loves me and wants to try again. Just when I was starting to get my head untangled.
Sweetheart, you don't have to allow them to have room in your head. Just because they get in touch does not give them any right over your life now. The best thing to do, I think, is to ignore them and not let them have any of your time.
Jaquaia
18-09-17, 11:15 PM
If I'm honest, I don't think I'm doing as well as I thought I was and this was just stuff on top that I didn't need. I've barely drank this weekend, not eaten properly at all and not got up to anything healthy really.
You should just send back "no thanks" and move on...
Why haven't you eaten and drunk properly? When are your parents home?
Jaquaia
19-09-17, 10:11 AM
I couldn't be bothered, which should be a red flag for me. Parents got back last night so I did eat properly then.
Just spoke to a receptionist at my gps. They only got the shared care bit from the rheumatologist yesterday! Ffs! This is ridiculous! I need to start this medication. I'm in a massive flare up at the moment, the pain in my wrist actually woke me up last night! I'm back in clinic in 2 weeks time and it's looking like I might have managed 1 week on the methotrexate when I should have been on it a month. Absolutely ridiculous!!!
Ok so now they have it, when can you start it?
Jaquaia
19-09-17, 10:21 AM
No idea! It's with the doctor and he hasn't seen it yet! They'll contact me when he's had chance to look at it
Jaquaia
19-09-17, 10:38 PM
Not a dickie bird. Someone is really failing in my care
S deleted
19-09-17, 11:19 PM
Or several someone's
Can you get an appointment and make someone listen?
Jaquaia
20-09-17, 09:19 AM
I'm here for my yearly review with the weightwise team so will speak to the receptionist afterwards
Hope it goes well lovely!
Jaquaia
20-09-17, 10:16 AM
2lbs down on a year ago but up from when I last weighed, but considering how much crap I ate when my period was due I'm not really surprised. Lost about 4 cm around my waist too.
And the fecking dr still hasn't looked at the stuff from my rheumatologist!
Well done on the losses!
Call your dr and demand an appointment to sort it out!
Jaquaia
20-09-17, 05:22 PM
I'm just writing today off
Jaquaia
20-09-17, 06:02 PM
Just spoken to the doctor. They've finally sorted the meds out! About bloody time!
S deleted
20-09-17, 06:42 PM
Woohoo!
Yay! So when do you get them? Have you asked for anti sickness too? I know my friend struggles without it..
Jaquaia
20-09-17, 10:01 PM
Grabbing them tomorrow and been put on folic acid too. 6 bloody tablets going up to 8 after 2 weeks if my bloods are ok.
Not having a great day today, and as a result I'm slightly tipsy.
How are you feeling today lovely?
Jaquaia
21-09-17, 10:14 AM
Not great. Hands are sore, both shoulders are flaring and I'm feeling pretty numb today. I know it's counselling hangover though. I finally brought up my attacks.
magie06
21-09-17, 10:15 AM
Be kind to yourself today then. Take a short walk, take a bath, treat your skin to a treatment, those kind of things.
Wow that's huge Jaq. It's really hard when you have to start talking about things like that... Much love (bear)
Jaquaia
21-09-17, 11:42 AM
I finally brought up my recent behaviour with her and it just came out.
Not being helped today by fatigue kicking my arse either.
I'm so proud of you for talking about it all. I know how hard it is. Are you OK?
Jaquaia
21-09-17, 11:51 AM
I'm struggling and the flare up and fatigue really isn't helping matters. And I know it's something I still need to talk about as I'm back in the mindset of it must have been my fault.
IT certainly wasn't your fault... (bear)(bear)
S deleted
21-09-17, 12:41 PM
How was it your fault? Do you think that your current behaviour is linked to your history?
Jaquaia
21-09-17, 01:42 PM
I think the usual, I should have done more to stop them, I should have fought them off. Logically I know that it wasn't my fault but those thoughts are there at the back of my mind. My current behaviour, I wonder if it's a way to get rid of the numbness, or is it a way of taking power back as this is my choice. I haven't had the power to chose taken away from me itms? Or am I just finally shedding other peoples standards and establishing my own.
S deleted
21-09-17, 02:26 PM
You sure know how to answer a question with a question lol. I know there's no easy answer to that one but I know my experiences have shaped me. How do you feel about your recent behaviour? You said before you had concerns? Maybe you need to slow down a bit?
Jaquaia
21-09-17, 03:42 PM
I dunno. It's weird but something feels a bit off. I don't know what it is but I'm having fun and it's liberating. I don't know. It could be my inability to completely relax or it could be the values I was raised with whispering at me.
S deleted
21-09-17, 04:31 PM
I've said it before but I am a bit jealous of your confidence to get out there and enjoy yourself. I sometimes wish I could just let go but I'm too scared.
Jaquaia
21-09-17, 05:56 PM
I wouldn't say confidence, more like (swear)(swear)(swear)(swear)(swear)(swear)(swear)( swear) to what anyone says or thinks. I'm pushing myself out of my comfort zone.
S deleted
21-09-17, 06:35 PM
Exactly. You're pushing your boundaries which makes me so damned proud of you, but what is confidence if it's not saying (swear)(swear)(swear)(swear)(swear)(swear)(swear)( swear) to what others think or say?
I'm also amazed by you. Are you concerned about you recently getting out, meeting people and living?
Jaquaia
21-09-17, 09:25 PM
It's more then that but I'll put it on my other thread.
How are you today lovely?
Jaquaia
22-09-17, 12:11 PM
I'm ok. Spent an hour or so just chilling with my friend J this morning so in a better frame of mind. Plus he's good at giving hugs :)
So glad you got out to meet a friend lovely x
Jaquaia
23-09-17, 03:20 PM
Not sure what possessed me today but I agreed to meet a friend for a coffee today. In town. On a saturday! Exhausted now
S deleted
23-09-17, 03:22 PM
Fair play to ya.
Well done love! That's quite an achievement! I hate going into town on a Saturday!
Jaquaia
25-09-17, 10:55 AM
Started the methotrexate today. I'd keep my fingers crossed that they don't make me ill but I can't physically cross them.
Did you get the anti sickness meds too?
I really hope they help love x
Jaquaia
25-09-17, 11:50 AM
Just folic acid. Will see how I go and if it's a problem then ai'm back in clinic next week.
Jaquaia
25-09-17, 09:21 PM
It's not been a good day. Other then a bowl of cereal I've struggled to eat anything other than dry crackers and sip water. I forced down some scrambled egg on toast for my tea but feel even more nauseous. On top of that I've had a blip and ended up sat crying this morning! So yeah, it's been fun.
S deleted
25-09-17, 09:22 PM
What was the cause of the tears?
Jaquaia
25-09-17, 09:22 PM
Feeling lonely.
S deleted
25-09-17, 10:02 PM
I know that one all too well at the moment.
My friend Anna struggles to eat on methotrexate day too. She finds things like belvita biscuits and rice cakes are good.
Sorry you're feeling lonely hunni x Hope you're feeling at least a little brighter today...
Jaquaia
26-09-17, 10:16 AM
I am. My friend J popped round to see me, I think he could tell I wasn't good yesterday, and he's good with hugs!
magie06
26-09-17, 11:45 AM
My sister was on methotrexate for her arthritis from January till her last review in June and she couldn't take it. It was too difficult on her stomach. I don't know what she's taking instead, but I do know that she is have dreadful pains in her hips.
Jaquaia
26-09-17, 01:53 PM
Well I've managed breakfast and back on dry crackers now. Thankfully, t'internet says the side effects reduce as it builds up in your system so hoping for that.
S deleted
26-09-17, 02:12 PM
I'll cross my fingers for you seeing as you can't
Jaquaia
26-09-17, 02:15 PM
Ta mate! That's what friends are for! (giggle)
Jaquaia
26-09-17, 03:58 PM
Not too bad but the nausea is still there, just not as bad
Glad it's not as bad lovely. Have you managed to eat at all today? What about resting?
Jaquaia
26-09-17, 07:43 PM
My eating hasn't been great but I've managed a little bit.
And resting? Are you taking proper and gentle care of you?
Jaquaia
26-09-17, 09:31 PM
I'm trying to.
That doesn't sound as if you are...... Sweetheart I'm worried about you. Have you got support for you through this?
Jaquaia
26-09-17, 10:12 PM
To borrow a phrase from J, it's like medical top trumps. Every time I say my hands hurt, my mums hurt so much more, so I just give up saying anything, crack on with it and rest when I can.
I can relate to that so much. Maybe you could try talking to us about it?
Jaquaia
27-09-17, 10:18 AM
I don't really know what to say about it. I'm used to just having to get on with it, I have had to do that since the pain first started.
magie06
27-09-17, 10:24 AM
How are you doing today? I noticed that you were around very late last night and very early this morning. Are you getting any sleep?
Jaquaia
27-09-17, 10:31 AM
I'm not sleeping well. I often wake up several times during the night but it's been worse over the past few nights. I'm even turning on a blue light filter on my phone so it doesn't fool my body into thinking it's daylight and that's not really helped, although that's early days using that.
I don't really know what to say about it. I'm used to just having to get on with it, I have had to do that since the pain first started.
I completely understand this. I've always had pain and was quite often told I was making it up when I was growing up - strange now that my Mum has decided that she's in so much pain constantly that she needs to tell me how badly she hurts and that I am the only who can understand that............. but her's is much, much worse than mine obviously....... *gently squishes Jaq*
I'm not sleeping well. I often wake up several times during the night but it's been worse over the past few nights. I'm even turning on a blue light filter on my phone so it doesn't fool my body into thinking it's daylight and that's not really helped, although that's early days using that.
Again I sympathise. My sleep is horrendous atm. What's your sleep hygiene like? Can you try to make a bedtime, shower/bath then bed with a warm milk or something?
magie06
27-09-17, 10:51 AM
I understand where you are coming from wits regards to sleep. My own pattern is gone to pieces at the moment. I get about 2 hours together and then I'm awake for an hour. I try to clear my mind when this happens but it doesn't always work.
Jaquaia
27-09-17, 12:20 PM
I tend to get a shower around 8pm then just relax in my room with the radio on.
My mums just asked me how my hands are today and I just told her they weren't too bad, no point saying they're really stiff and my movement is restricted as all I'll get is how bad hers are, and I was right as her next sentence was "it's just me having a bad flare up then". No mother, it's not, but the difference is I actually try and help myself.
I think most people I know with inflammatory problems are having flares atm... *Sends more squishy hugs*
Can you be kind to you today?
Jaquaia
27-09-17, 03:44 PM
I'm trying to be. Spent almost an hour on the phone with J this afternoon, he had his first counselling session and wanted to make sure he was ok afterwards, we ended up just having a general natter and a giggle and I think we both put the phone down feeling brighter. Other then that, I've sorted the shopping out and put it all away and started a book J lent me.
S deleted
27-09-17, 04:04 PM
What's the book?
Jaquaia
27-09-17, 04:30 PM
It's actually about trains (nerd)
S deleted
27-09-17, 04:47 PM
Oh great. Another train enthusiast lol
Trains?
Glad you had a really good time chatting to J ;)
Jaquaia
27-09-17, 09:23 PM
It's about the Talyllyn Railway in Wales and it smells amazing!!! And yes, I realise how weird that sounds, it looked even weirder when he handed the book over and I started sniffing it (rofl)
Does it smell like steam trains?
Jaquaia
27-09-17, 09:26 PM
It smells like old books!!! My favourite smell in the whole world
Jaquaia
28-09-17, 06:44 PM
Not having a great day today, I'm irritable and very agitated and trying so hard not to fiddle with my hands as they're flaring today.
S deleted
28-09-17, 07:17 PM
Anything happened to cause it?
I thought you were a bit quiet...
Could it be hormonal? (panda) for the flare....
Jaquaia
28-09-17, 08:31 PM
Not hormonal, was only on 2 weeks ago. Think I'm just having a blip. Had Scarlett cuddles though.
Hey lovely, just sending gentle hugs (bear)
Aw sweetheart (bear)(bear)
Jaquaia
28-09-17, 09:38 PM
Just feeling like I'm back to square one tonight. It will pass
You are so much further than step one love. How are you feeling today?
OldMike
29-09-17, 11:51 AM
I'm sending you much love and hugs Jaq (bear) (panda) (bear)
Jaquaia
29-09-17, 12:34 PM
So so. Having a pretty bad flare up today. Only just managed to shower, getting dressed is the next challenge! And it hurts to swallow but only at the back on the right side, so dunno if it's wisdom teeth or my salivary gland is inflamed.
Oh hunni... Can you drink more?
Jaquaia
29-09-17, 02:46 PM
I'm trying to.
S deleted
29-09-17, 03:09 PM
Don’t make me come and examine your pee lol
*Tries to remove that image of Stella examining Jaq's pee from my head*
Hope you're feeling a little brighter lovely.
Jaquaia
29-09-17, 05:59 PM
J popped round when he finished work so spent an hour or so having a giggle with him, so feeling a bit brighter. He was struggling following counselling on weds and he knew I've been struggling so we support each other. Sometimes it helps to just have someone to physically give you a hug.
S deleted
29-09-17, 06:07 PM
You guys are spending a lot of time together lately.
Jaquaia
29-09-17, 06:13 PM
I'm being very careful to keep things as just friends.
Should be out next friday with G and Matt but Matt has put his back out and G can be a bit full on so may give that a miss, unless his missus is out too!
Why? Not that I’m saying it’s wrong to protect your friendship, but what are your reasons?
Jaquaia
29-09-17, 08:24 PM
He is married.
Ahh, then it's a good idea to keep as friends...
Jaquaia
30-09-17, 02:18 PM
Can I stay in bed next week please? Not looking forward to it at all. Got blood tests with my mum on monday morning and it's methotrexate day, I'm back at rheumatology clinic on tuesday, I see Doug, my new dietician, on weds, followed swiftly by my own blood tests being done and then counselling, all before 12! And my mum is at physio on thursday. In between all that I need to go to the vets for Talia's worming tablet as I keep forgetting it, try and do some housework and somehow fit some resting in.
Yuk! What a horrible week! Any chance your Mum could go on her own for bloods?
Jaquaia
30-09-17, 07:26 PM
She's said that she's not going to wake me up to go with her, so that's something at least.
I think maybe that might be for the best - maybe you need to focus on you a little?
Jaquaia
30-09-17, 11:22 PM
I don't really know how to do that. There's always something that needs doing that my mum can't do.
How much of those things that need doing would really suffer by you just taking a day off from ‘doing’?
Jaquaia
01-10-17, 10:19 AM
I keep putting them off as it is and they're bugging me.
I get that, but sometimes it's more important to rest, maybe watch a movie? Have a long bath or sit and read and knit or something or just go out and wander in a park or sit in a cafe with a coffee and watch the world go by...
OldMike
01-10-17, 11:33 AM
As Suzi says resting can be more important than struggling to get all your jobs done. (bear)
Jaquaia
01-10-17, 12:11 PM
I have been reading a fair bit but struggling to focus properly. Have 3 books on the go at the moment, and I need to finish my mums scarf. I have started getting into radio comedies though.
Jaquaia
01-10-17, 06:34 PM
I started the sequel to Flowers in the Attic and lost my concentration so put it down. Then the book I pre-ordered arrived and I was excited about it so I started that but couldn't focus. So I started the book that J lent me.
Lol! Which one's your favourite so far??
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